# Adenoid Cystic Carcinoma Research Foundation

Source: https://onco.cc/institutions/accrf/  
OnCo record `accrf` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A US foundation started by patients in 2005 that funds research on adenoid cystic carcinoma, keeps a list of open clinical trials and helps patients find specialists and donate tumour tissue.

## Summary

The Adenoid Cystic Carcinoma Research Foundation was started in 2005, according to its home page, with the goal of getting better therapies to people with adenoid cystic carcinoma (ACC) as fast as possible. The same page lists the research milestones it says it helped bring about: the MYB-NFIB fusion found in ACC tumours (2009), the first preclinical ACC models for drug screening (2011), NOTCH identified as a driver of aggressive ACC (2017) and ten ACC clinical trials open at once (2020). For patients its site covers understanding ACC, finding a physician, second opinions, tumour profiling, open trials and tumour donation; for researchers it offers grants and a toolkit of cell cultures, patient-derived xenograft (PDX) models and screening, mouse models and antibodies. The IRS lists it in Needham, Massachusetts, with tax exemption from March 2006.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: ACCRF; Adenoid Cystic Carcinoma Researchfoundation
- City: Needham, MA, US
- Type: consortium
- Website: https://accrf.org

## Sources

- ACCRF home page (history and milestones): https://accrf.org/
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/206745475

## Connected records

- institutions: [Brave Like Gabe Foundation](https://onco.cc/institutions/brave-like-gabe/), [Rare Cancer Research Foundation](https://onco.cc/institutions/rare-cancer-research-foundation/)
- cancers: [Adenoid cystic carcinoma](https://onco.cc/cancers/adenoid-cystic-carcinoma/), [Adenoid cystic carcinoma of the breast](https://onco.cc/cancers/adenoid-cystic-carcinoma-breast/), [Salivary gland cancers](https://onco.cc/cancers/salivary-gland/)
- technologies: [Patient-derived xenografts](https://onco.cc/technologies/pdx-models/)

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