# Alliance for Rare Cancers

Source: https://onco.cc/institutions/alliance-for-rare-cancers/  
OnCo record `alliance-for-rare-cancers` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A US national alliance of rare cancer foundations, researchers and cancer centres building shared access to rare tumour tissue, models and data; it runs a rare cancer data pilot with Case Comprehensive Cancer Center and the Rare Cancer Research Foundation.

## Summary

The Alliance for Rare Cancers states its mission as uniting the rare cancer community to speed cures for all rare cancers, and describes itself as building a coordinated national alliance to give researchers access to patient tissue, preclinical models and data. Its home page says that with Case Comprehensive Cancer Center and the Rare Cancer Research Foundation it has received a $1 million grant from the Chan Zuckerberg Initiative's Biohub for a rare cancer data pilot; Pattern.org describes the resulting Rare Cancer Data Initiative as collecting donated tumour tissue and clinical information for genome, RNA and protein studies and new research models. Its leadership page lists a board drawn from the Jedi Rare Cancer Foundation, Case Comprehensive Cancer Center, the Children's Tumor Foundation, MD Anderson, the Rare Cancer Research Foundation and others, with the head of SARC and a former executive director of NCI's MyPART on its leadership council. It is a fiscally sponsored programme of the Jedi Rare Cancer Foundation, with which it shares a post office box in Dobbs Ferry, New York.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: ARC (Alliance for Rare Cancers)
- City: Dobbs Ferry, NY, US
- Type: consortium
- Website: https://allianceforrarecancers.org

## Notes

- The alliance has no IRS record of its own; the EIN shown is the Jedi Rare Cancer Foundation's, which the alliance's site names as its fiscal sponsor.

## Sources

- Alliance for Rare Cancers: https://allianceforrarecancers.org/
- ARC: vision: https://allianceforrarecancers.org/vision
- ARC: leadership: https://allianceforrarecancers.org/leadership
- Pattern.org: Rare Cancer Data Initiative: https://pattern.org/
- Rare Cancer Research Foundation: patient advocacy partners: https://rarecancer.org/patients-advocacy-partners
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/862610819

## Connected records

- institutions: [Case Comprehensive Cancer Center](https://onco.cc/institutions/case-ccc/), [Children's Tumor Foundation](https://onco.cc/institutions/childrens-tumor-foundation/), [Jedi Rare Cancer Foundation](https://onco.cc/institutions/jedi-rare-cancer-foundation/), [Rare Cancer Research Foundation](https://onco.cc/institutions/rare-cancer-research-foundation/)
- collections: [Pattern.org and the Pattern Biobank](https://onco.cc/collections/pattern-org/)
- companies: [Chan Zuckerberg Initiative (Biohub)](https://onco.cc/companies/chan-zuckerberg-initiative/), [SARC (Sarcoma Alliance for Research through Collaboration)](https://onco.cc/companies/sarc/)
- terms: [Rare cancers](https://onco.cc/terms/rare-cancers/)
- bottlenecks: [Rare and paediatric cancers without markets](https://onco.cc/bottlenecks/b-rare-cancers/)

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