# Histiocytosis Association

Source: https://onco.cc/institutions/histiocytosis-association/  
OnCo record `histiocytosis-association` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A patient organisation founded in 1986 by the parents of a child with Langerhans cell histiocytosis, which supports patients and families with histiocytic disorders worldwide and funds research.

## Summary

The Histiocytosis Association was started by Jeff and Sally Toughill at their kitchen table in Pitman, New Jersey, after their daughter was diagnosed with Langerhans cell histiocytosis as a baby, according to its organisational history page. They mailed their first newsletter in August 1986, incorporated the association as a New Jersey non-profit in October 1986 and gained 501(c)(3) status in May 1988. Its about page describes a global non-profit that raises awareness of histiocytic disorders, provides educational and emotional support, and funds research; its staff page says it also serves as the secretariat of the Histiocyte Society and runs a grant programme, a podcast and a volunteer ambassador programme. The IRS records it in Pitman, New Jersey.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: Histiocytosis Association Inc
- City: Pitman, NJ, US
- Type: consortium
- Website: https://histio.org

## Sources

- Histiocytosis Association: organisational history: https://histio.org/about-2-2/organizational-history/
- About the Histiocytosis Association: https://histio.org/about/
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/222827069

## Connected records

- institutions: [Histiocyte Society](https://onco.cc/institutions/histiocyte-society/)
- cancers: [Erdheim-Chester disease](https://onco.cc/cancers/erdheim-chester-disease/), [Erdheim-Chester disease, Rosai-Dorfman disease and other histiocytic neoplasms](https://onco.cc/cancers/histiocytoses/), [Langerhans cell histiocytosis (LCH)](https://onco.cc/cancers/langerhans-cell-histiocytosis/), [Rosai-Dorfman-Destombes disease](https://onco.cc/cancers/rosai-dorfman-disease/)

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