# Pheo Para Alliance

Source: https://onco.cc/institutions/pheo-para-alliance/  
OnCo record `pheo-para-alliance` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

An international patient organisation for pheochromocytoma and paraganglioma, founded in 2007, with peer support, education webinars, a centres of excellence programme and research funding.

## Summary

The Pheo Para Alliance was founded in 2007 and calls itself the longest-standing internationally recognised advocacy organisation for pheochromocytoma and paraganglioma (PPGL), according to its about page, which says it has given more than $2 million to research, diagnosis, education, advocacy and the search for a cure. Its programmes include a Center of Excellence Program, an education webinar series, national and regional conferences, one-to-one and monthly peer support and patient-centred research. Its educational material is reviewed by a medical advisory board of PPGL specialists. It states that it is a 501(c)(3) incorporated in Virginia; the IRS lists a Pheo Para Patient Initiative Incorporated in Free Union, Virginia, with tax exemption from August 2010.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: PPA
- City: Free Union, VA, US
- Type: consortium
- Website: https://pheopara.org

## Notes

- The IRS record is matched on name and state: the alliance says it is incorporated in Virginia, and the only Virginia exempt organisation with a matching name is Pheo Para Patient Initiative Incorporated. The site does not state its EIN.

## Sources

- Pheo Para Alliance: about: https://pheopara.org/about/thealliance
- Pheo Para Alliance home page: https://pheopara.org/
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/272423774

## Connected records

- institutions: [Rare Cancer Research Foundation](https://onco.cc/institutions/rare-cancer-research-foundation/)
- cancers: [Pheochromocytoma and paraganglioma (PPGL)](https://onco.cc/cancers/pheochromocytoma-paraganglioma/)

---
JSON: https://onco.cc/api/v1/entities/pheo-para-alliance.json