# Rare Cancers Japan

Source: https://onco.cc/institutions/rare-cancers-japan/  
OnCo record `rare-cancers-japan` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A network of rare cancer patient groups and patients in Japan, founded in August 2017, that works on policy, patient involvement in research and guidelines, and awareness of rare cancers.

## Summary

Rare Cancers Japan (in Japanese, 一般社団法人日本希少がん患者会ネットワーク) is a general incorporated association founded in August 2017, according to its organisation overview page, with a mailing address in Chiyoda, Tokyo and no permanent staff. Its full members are rare cancer patient organisations and rare cancer patients or their families, including bereaved families. Its articles, as quoted on that page, aim to improve the situation of rare cancers, in adults and children alike, where small patient numbers have delayed care systems, treatment development, basic research and public information. Its mission page lists working with rare cancer medical societies to bring in advanced treatment and involve patients in clinical research, publishing the information patients need, exchanging information with rare cancer patient groups abroad, and surveying members to find shared problems. Its site lists rare cancer patient summits, a Rare Cancer Awareness Month, Rare Cancer Open Days and regional caravans.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: RCJ; 一般社団法人日本希少がん患者会ネットワーク; Japan Rare Cancer Patients Network
- City: Tokyo, JP
- Type: consortium
- Website: https://rarecancersjapan.org

## Sources

- Rare Cancers Japan: organisation overview (Japanese): https://rarecancersjapan.org/org/overview/
- Rare Cancers Japan: mission (Japanese): https://rarecancersjapan.org/org/mission/

## Connected records

- terms: [Rare cancers](https://onco.cc/terms/rare-cancers/)

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JSON: https://onco.cc/api/v1/entities/rare-cancers-japan.json