# Rein in Sarcoma

Source: https://onco.cc/institutions/rein-in-sarcoma/  
OnCo record `rein-in-sarcoma` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A Minnesota sarcoma charity, founded in 2001, that supports patients and families, runs education programmes and funds sarcoma research at Minnesota institutions.

## Summary

Rein in Sarcoma says it was founded in Minnesota in 2001 and began with a fundraising event held for Karen Wyckoff, who died of synovial sarcoma a month after the first event. Its about page describes a three-part mission of educating the public and the medical community about sarcoma, supporting patients and their families, and funding research. Its research page says it has funded nearly $2 million of sarcoma research, mainly at the University of Minnesota and, since 2017, also at Mayo Clinic and Children's Minnesota, and that this work has led to more than $13 million in further grants; funded projects listed include work on rhabdomyosarcoma, CIC::DUX4 sarcoma, DICER1-related sarcomas and Ewing sarcoma. The IRS lists it as Karen Wyckoff Rein In Sarcoma, a 501(c)(3) charity in Fridley, Minnesota.

## Fields

- Kind: Institution
- Last checked: 2026-11-05
- Also known as: Karen Wyckoff Rein In Sarcoma; RIS
- City: Fridley, MN, US
- Type: consortium
- Website: https://reininsarcoma.org

## Sources

- About Rein in Sarcoma: https://reininsarcoma.org/about-rein-in-sarcoma/
- Rein in Sarcoma: research: https://reininsarcoma.org/research/
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/200811343

## Connected records

- institutions: [Children's Minnesota Cancer and Blood Disorders Program](https://onco.cc/institutions/childrens-minnesota-cancer-blood/), [Masonic Cancer Center, University of Minnesota](https://onco.cc/institutions/minnesota-masonic/), [Mayo Clinic](https://onco.cc/institutions/mayo-clinic/), [Rare Cancer Research Foundation](https://onco.cc/institutions/rare-cancer-research-foundation/)
- cancers: [Ewing sarcoma](https://onco.cc/cancers/ewing-sarcoma/), [Rhabdomyosarcoma](https://onco.cc/cancers/rhabdomyosarcoma/), [Sarcomas (soft tissue, bone, GIST)](https://onco.cc/cancers/sarcoma/), [Synovial sarcoma](https://onco.cc/cancers/synovial-sarcoma/)

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