# The ROS1ders

Source: https://onco.cc/institutions/the-ros1ders/  
OnCo record `the-ros1ders` (Institution). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

A volunteer group of patients and carers living with ROS1-positive cancer, founded in 2015, whose members donate tumour samples to build research models.

## Summary

The ROS1ders was founded in 2015 by a small group of patients with ROS1-positive lung cancer and incorporated in 2019 as a 501(c)(3) non-profit run by volunteers, most of them patients or caregivers, according to its about page. It describes itself as the largest collection of ROS1-positive patients and caregivers in the world, with hundreds of members in dozens of countries. Members donate fresh tumour specimens to create cancer models, and it has partnered with other non-profits to drive research into ROS1-positive cancers. The IRS record lists it in Sacramento.

## Fields

- Kind: Institution
- Last checked: 2026-11-04
- Also known as: ROS1ders; The ROS1ders, Inc.
- City: Sacramento, CA, US
- Type: consortium
- Website: https://www.theros1ders.org

## Sources

- About The ROS1ders: https://www.theros1ders.org/about-the-ros1ders
- IRS record (via ProPublica Nonprofit Explorer): https://projects.propublica.org/nonprofits/organizations/834490547

## Connected records

- institutions: [ALK Positive](https://onco.cc/institutions/alk-positive-patient-group/), [EGFR Resisters](https://onco.cc/institutions/egfr-resisters/)
- cancers: [ROS1-positive non-small-cell lung cancer](https://onco.cc/cancers/ros1-positive-nsclc/)
- targets: [ROS1](https://onco.cc/targets/ros1/)

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JSON: https://onco.cc/api/v1/entities/the-ros1ders.json