{"entity":{"id":"a-cure-in-sight","kind":"institution","name":"A Cure In Sight","aka":["ACIS","A Cure In Sight Foundation"],"tldr":"A US patient charity for ocular (uveal) melanoma, founded by patients in 2012, that gives financial help, peer support and education, and runs a patient registry and a biobank with Pattern.org.","summary":"A Cure In Sight was founded in 2012 by Melody Kling, Megan Bekkedahl, Laura Duvall and Tania Herfurth, a group of patients who saw others skipping medical care because of cost, according to its history page. It describes itself as a patient-focused nonprofit giving education, advocacy and guidance to people with ocular melanoma and their carers, and lists financial assistance, the Cure Companions peer programme, the OMG (Ocular Melanoma Getaway) holidays for people with metastatic disease and survivorship seminars. In 2020 it partnered with UCSF to launch the Insight Global Registry, which it calls the first self-reported ocular melanoma patient database. Pattern.org's home page describes the Insight Biobank for Ocular Melanoma as an advocacy-led biorepository that A Cure In Sight is building in partnership with Pattern.org, storing donated tissue, blood and clinical data and growing patient-derived cell lines. The IRS lists it in Raleigh, North Carolina, with tax exemption from September 2014.","asOf":"2026-11-05","links":[{"label":"A Cure In Sight: history","url":"https://acureinsight.org/a-cure-in-sight-for-ocular-melanoma-2/history/"},{"label":"A Cure In Sight home page","url":"https://acureinsight.org/"},{"label":"Pattern.org: Insight Biobank","url":"https://pattern.org/"},{"label":"IRS record (via ProPublica Nonprofit Explorer)","url":"https://projects.propublica.org/nonprofits/organizations/461274306"}],"tags":[],"related":["rare-cancer-research-foundation","pattern-org","ocumel-uk"],"cancers":["uveal-melanoma"],"sections":[],"technologies":["biobanking"],"targets":[],"drugs":[],"companies":[],"institutions":["ucsf"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Raleigh, NC","country":"US","lat":35.78,"lng":-78.639,"institutionType":"consortium","website":"https://acureinsight.org","programs":["Financial assistance for ocular melanoma patients","Cure Companions peer support","Insight Global Registry (with UCSF)","Insight Biobank for Ocular Melanoma (with Pattern.org)","Survivorship patient education seminars"]},"route":"/institutions/a-cure-in-sight/","neighbours":{"institution":[{"id":"ocular-melanoma-foundation","kind":"institution","name":"Ocular Melanoma Foundation","route":"/institutions/ocular-melanoma-foundation/"},{"id":"ocumel-uk","kind":"institution","name":"Ocular Melanoma UK","route":"/institutions/ocumel-uk/"},{"id":"rare-cancer-research-foundation","kind":"institution","name":"Rare Cancer Research Foundation","route":"/institutions/rare-cancer-research-foundation/"},{"id":"ucsf","kind":"institution","name":"UCSF Helen Diller Family Comprehensive Cancer Center","route":"/institutions/ucsf/"}],"collection":[{"id":"pattern-org","kind":"collection","name":"Pattern.org and the Pattern Biobank","route":"/collections/pattern-org/"}],"cancer":[{"id":"uveal-melanoma","kind":"cancer","name":"Uveal melanoma","route":"/cancers/uveal-melanoma/"}],"technology":[{"id":"biobanking","kind":"technology","name":"Biobanking and tissue procurement","route":"/technologies/biobanking/"}]}}