{"entity":{"id":"appendix-cancer-connection","kind":"institution","name":"Appendix Cancer Connection","aka":["Appendix Cancer Connection Inc"],"tldr":"A small US non-profit, founded in 2008 by a nurse who has appendix cancer, that gives support and information to people newly diagnosed with appendix cancer.","summary":"Appendix Cancer Connection Inc. was founded to provide support and information to people newly diagnosed with appendix cancer, and was incorporated in 2008 as a 501(c)(3), according to its about page. Its founder, Carolyn Langlie-Lesnik, an oncology clinical nurse specialist, writes there that she was diagnosed with signet ring appendix cancer in 2001, was treated with cytoreductive surgery and peritoneal chemotherapy, and has since communicated with more than 3,000 newly diagnosed appendix cancer patients. The same page profiles surgeons who perform cytoreductive surgery with hyperthermic intraperitoneal chemotherapy (HIPEC). The IRS records it in Schererville, Indiana, with tax exemption issued in March 2008.","asOf":"2026-11-05","links":[{"label":"About Appendix Cancer Connection","url":"https://appendix-cancer.org/about-appendix-cancer-connection/"},{"label":"IRS record (via ProPublica Nonprofit Explorer)","url":"https://projects.propublica.org/nonprofits/organizations/260497171"}],"tags":[],"related":["pmp-pals"],"cancers":["appendiceal","appendiceal-adenocarcinoma","low-grade-appendiceal-mucinous-neoplasm"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Schererville, IN","country":"US","lat":41.479,"lng":-87.455,"institutionType":"consortium","website":"https://appendix-cancer.org","programs":["Support and information for people newly diagnosed with appendix cancer","Information about specialist surgeons offering cytoreductive surgery and HIPEC"]},"route":"/institutions/appendix-cancer-connection/","neighbours":{"institution":[{"id":"pmp-pals","kind":"institution","name":"PMP Pals","route":"/institutions/pmp-pals/"},{"id":"pseudomyxoma-survivor","kind":"institution","name":"Pseudomyxoma Survivor","route":"/institutions/pseudomyxoma-survivor/"}],"cancer":[{"id":"appendiceal-adenocarcinoma","kind":"cancer","name":"Appendiceal adenocarcinoma (mucinous and non-mucinous, including signet ring cell)","route":"/cancers/appendiceal-adenocarcinoma/"},{"id":"appendiceal","kind":"cancer","name":"Appendiceal cancer and pseudomyxoma peritonei","route":"/cancers/appendiceal/"},{"id":"low-grade-appendiceal-mucinous-neoplasm","kind":"cancer","name":"Low-grade appendiceal mucinous neoplasm and pseudomyxoma peritonei","route":"/cancers/low-grade-appendiceal-mucinous-neoplasm/"}]}}