{"entity":{"id":"cern-foundation","kind":"institution","name":"CERN Foundation (Collaborative Ependymoma Research Network)","aka":["Collaborative Ependymoma Research Network","CERN Foundation"],"tldr":"A US ependymoma foundation, now a programme of the National Brain Tumor Society, that funds ependymoma research fellowships and projects and helps patients find specialists.","summary":"The CERN Foundation says it was established in 2006 and is now a designated programme of the National Brain Tumor Society dedicated to people affected by ependymoma, a rare tumour of the brain and spinal cord. Its about page credits its international network of collaborators with more than 50 peer-reviewed papers, and says it supports scientific fellowships, clinical trials, conferences and studies of risk factors, alongside patient education and referral support. Its home page describes an ependymoma guide (third edition), help connecting patients with neuro-oncologists who specialise in ependymoma, Ependymoma Awareness Day on 10 June (started by the foundation in 2012), a 2026 CERN and Robert Connor Dawes fellowship awarded through the National Brain Tumor Society, and a new project on spinal ependymoma led by Eric Holland at Fred Hutchinson Cancer Center. The National Cancer Institute lists it as a partner of its NCI-CONNECT rare brain and spine tumour network. Its site gives a post office box in Zionsville, Indiana.","asOf":"2026-11-05","links":[{"label":"CERN Foundation: about","url":"https://www.cern-foundation.org/about"},{"label":"CERN Foundation home page","url":"https://www.cern-foundation.org/"},{"label":"NCI-CONNECT partners","url":"https://www.cancer.gov/rare-brain-spine-tumor/refer-participate/partnerships"}],"tags":[],"related":["national-brain-tumor-society"],"cancers":["ependymoma","spinal-cord-tumours","brain-tumours"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":["nci","fred-hutch"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Zionsville, IN","country":"US","lat":39.951,"lng":-86.262,"institutionType":"consortium","website":"https://www.cern-foundation.org","programs":["Ependymoma research fellowships and projects","Ependymoma guide and patient education","Referrals to neuro-oncologists who specialise in ependymoma","Ependymoma Awareness Day (10 June)"]},"route":"/institutions/cern-foundation/","neighbours":{"collection":[{"id":"national-brain-tumor-society","kind":"collection","name":"National Brain Tumor Society (NBTS)","route":"/collections/national-brain-tumor-society/"}],"cancer":[{"id":"brain-tumours","kind":"cancer","name":"Brain and spinal cord tumours (all types)","route":"/cancers/brain-tumours/"},{"id":"ependymoma","kind":"cancer","name":"Ependymoma","route":"/cancers/ependymoma/"},{"id":"spinal-cord-tumours","kind":"cancer","name":"Spinal cord tumours (intramedullary and intradural)","route":"/cancers/spinal-cord-tumours/"}],"institution":[{"id":"fred-hutch","kind":"institution","name":"Fred Hutchinson Cancer Center","route":"/institutions/fred-hutch/"},{"id":"nci","kind":"institution","name":"National Cancer Institute (NIH)","route":"/institutions/nci/"}]}}