{"entity":{"id":"data-use-agreements","kind":"term","name":"Data use agreements and consent for research use","aka":["data use agreement","data use agreements","DUA","data access agreement","consent for research use","research consent","broad consent","secondary use consent"],"tldr":"A data use agreement is the contract a researcher signs to receive controlled data, promising to protect it and use it only as the participants consented.","summary":"Informed consent is the principle that a person must have sufficient information and understanding before accepting risk (Wikipedia), and for research data it defines what future uses are allowed, from a single study to broad research use; data sharing policies from funders and journals then set how datasets are released. Controlled archives translate the consent into data use limitations attached to each study, and the data use agreement binds the recipient's institution to them. Commercial use, re-contact and cross-linking are the clauses that most often bite.","asOf":"2026-09-24","wikipedia":"https://en.wikipedia.org/wiki/Informed_consent","links":[{"label":"Wikipedia: data sharing","url":"https://en.wikipedia.org/wiki/Data_sharing"},{"label":"dbGaP (NCBI)","url":"https://www.ncbi.nlm.nih.gov/gap/"},{"label":"Wikipedia","url":"https://en.wikipedia.org/wiki/Informed_consent"}],"tags":["cansim-terms"],"related":["cancer-ai-vocabulary"],"cancers":[],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":["informed-consent","controlled-access-data","hipaa"],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":["Listed in the CanSim terms map 1.0.0 (docs/onco/terms.json, generated 2026-09-24), CC BY 4.0, attribution: CanSim project, an open, public-data-first cancer foundation-model programme; CanSim page path /terms/data-use-agreements."],"provenance":{"editedBy":"OnCo CanSim terms wave (Wikipedia summaries, standards and project pages, GDC and FDA pages, Europe PMC)","editedOn":"2026-09-24","note":"CanSim terms map 1.0.0 (docs/onco/terms.json, generated 2026-09-24), CC BY 4.0, attribution: CanSim project, an open, public-data-first cancer foundation-model programme"},"category":"Regulation & policy"},"route":"/terms/data-use-agreements/","neighbours":{"term":[{"id":"cancer-ai-vocabulary","kind":"term","name":"Cancer AI vocabulary (CanSim terms map)","route":"/terms/cancer-ai-vocabulary/"},{"id":"controlled-access-data","kind":"term","name":"Controlled-access genomic data (dbGaP, EGA)","route":"/terms/controlled-access-data/"},{"id":"hipaa","kind":"term","name":"HIPAA (Health Insurance Portability and Accountability Act)","route":"/terms/hipaa/"},{"id":"informed-consent","kind":"term","name":"Informed consent","route":"/terms/informed-consent/"},{"id":"tcga-tiers","kind":"term","name":"TCGA open versus controlled data tiers","route":"/terms/tcga-tiers/"}]}}