{"entity":{"id":"finngen","kind":"collection","name":"FinnGen","aka":["FinnGen research project"],"tldr":"A Finnish research project that has read the genomes of over 500,000 people, almost one in ten Finns, and linked them to their national health records to find how genes cause disease. Its results are free for anyone to browse.","summary":"FinnGen describes itself as a large public-private research project in genomics and personalised medicine that has collected and analysed genome and health data from 500,000 Finnish biobank donors, using samples gathered by the nationwide network of Finnish biobanks and combining them with digital health-care data from national registries. The University of Helsinki is the organisation responsible; the consortium includes all Finnish public biobanks and their background organisations. The genome data produced are owned by the Finnish biobanks and remain available for research. Data freeze 13, the latest release on the site when read on 4 November 2026, comprises more than 500,000 individuals, more than 21.3 million variants and more than 2,750 health endpoints, browsable online with downloadable summary statistics. Cancers are among the endpoints that come from the national registries.","asOf":"2026-11-04","links":[{"label":"FinnGen","url":"https://www.finngen.fi/en"}],"tags":[],"related":["uk-biobank","biobank-japan"],"cancers":[],"sections":[],"technologies":["biobanking"],"targets":[],"drugs":[],"companies":[],"institutions":["fican"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":["The statement that cancers are among the endpoints is an inference from the registry linkage; the home page does not single out cancer, and no cancer finding is claimed here.","Linked to fican (Finnish Cancer Center) as the Finnish national cancer body; the University of Helsinki has no record in OnCo."],"url":"https://www.finngen.fi/en","holds":"Genome data combined with longitudinal national health-registry data for more than 500,000 Finnish biobank donors, almost 10 per cent of the population; data freeze 13 covers more than 21.3 million variants and more than 2,750 health endpoints, with results and summary statistics public.","license":"Summary statistics and browsable results public; individual-level data stay with the Finnish biobanks under their access rules","maintainer":"University of Helsinki, with all Finnish public biobanks and industry partners"},"route":"/collections/finngen/","neighbours":{"collection":[{"id":"biobank-japan","kind":"collection","name":"BioBank Japan (BBJ)","route":"/collections/biobank-japan/"},{"id":"uk-biobank","kind":"collection","name":"UK Biobank","route":"/collections/uk-biobank/"}],"technology":[{"id":"biobanking","kind":"technology","name":"Biobanking and tissue procurement","route":"/technologies/biobanking/"}],"institution":[{"id":"fican","kind":"institution","name":"Finnish Cancer Center (FICAN)","route":"/institutions/fican/"}]}}