{"entity":{"id":"histiocytosis-association","kind":"institution","name":"Histiocytosis Association","aka":["Histiocytosis Association Inc"],"tldr":"A patient organisation founded in 1986 by the parents of a child with Langerhans cell histiocytosis, which supports patients and families with histiocytic disorders worldwide and funds research.","summary":"The Histiocytosis Association was started by Jeff and Sally Toughill at their kitchen table in Pitman, New Jersey, after their daughter was diagnosed with Langerhans cell histiocytosis as a baby, according to its organisational history page. They mailed their first newsletter in August 1986, incorporated the association as a New Jersey non-profit in October 1986 and gained 501(c)(3) status in May 1988. Its about page describes a global non-profit that raises awareness of histiocytic disorders, provides educational and emotional support, and funds research; its staff page says it also serves as the secretariat of the Histiocyte Society and runs a grant programme, a podcast and a volunteer ambassador programme. The IRS records it in Pitman, New Jersey.","asOf":"2026-11-05","links":[{"label":"Histiocytosis Association: organisational history","url":"https://histio.org/about-2-2/organizational-history/"},{"label":"About the Histiocytosis Association","url":"https://histio.org/about/"},{"label":"IRS record (via ProPublica Nonprofit Explorer)","url":"https://projects.propublica.org/nonprofits/organizations/222827069"}],"tags":[],"related":["histiocyte-society"],"cancers":["langerhans-cell-histiocytosis","histiocytoses","erdheim-chester-disease","rosai-dorfman-disease"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Pitman, NJ","country":"US","lat":39.733,"lng":-75.131,"institutionType":"consortium","website":"https://histio.org","programs":["Research grant programme","Histio Ambassador volunteer programme","Online education series and Beyond the Diagnosis podcast","Secretariat for the Histiocyte Society"]},"route":"/institutions/histiocytosis-association/","neighbours":{"institution":[{"id":"histiocyte-society","kind":"institution","name":"Histiocyte Society","route":"/institutions/histiocyte-society/"}],"cancer":[{"id":"erdheim-chester-disease","kind":"cancer","name":"Erdheim-Chester disease","route":"/cancers/erdheim-chester-disease/"},{"id":"histiocytoses","kind":"cancer","name":"Erdheim-Chester disease, Rosai-Dorfman disease and other histiocytic neoplasms","route":"/cancers/histiocytoses/"},{"id":"langerhans-cell-histiocytosis","kind":"cancer","name":"Langerhans cell histiocytosis (LCH)","route":"/cancers/langerhans-cell-histiocytosis/"},{"id":"rosai-dorfman-disease","kind":"cancer","name":"Rosai-Dorfman-Destombes disease","route":"/cancers/rosai-dorfman-disease/"}]}}