{"entity":{"id":"icelandic-cancer-registry","kind":"institution","name":"Krabbameinsskrá Íslands","aka":["Icelandic Cancer Registry","Rannsóknasetur - Krabbameinsskrá"],"tldr":"Iceland's national cancer registry, which has recorded every cancer diagnosed in Iceland since 1955. It is run by the Icelandic Cancer Society for the Directorate of Health.","summary":"The Icelandic Cancer Registry was founded by the Icelandic Cancer Society (Krabbameinsfélag Íslands) with the Directorate of Health (Embætti landlæknis) in 1954 and holds data on all cancers and their precursors in Iceland from 1955. The Society's page says it covers more than 99% of cancers diagnosed in the population. It gained a legal basis in 2007 (Act 41/2007 and Regulation 548/2008) as one of the Directorate of Health's health registers, and is run, hosted and maintained by the Cancer Society under a contract with the Directorate; the Society and the Ministry of Health share its running costs. Reports come from pathology and haematopathology laboratories, hospital wards, primary care and doctors, usually within two months of diagnosis, with cases lacking pathology added from the cause of death register; coding follows ICD and ICD-O and ENCR guidelines. Researchers need the approval of the National Bioethics Committee for access to individual data. The coordinates are the OpenStreetMap point for Skógarhlíð 8, the address the Society's site gives.","asOf":"2026-11-11","links":[{"label":"Icelandic Cancer Society: Research Centre and Cancer Registry (in Icelandic)","url":"https://www.krabb.is/rannsoknasetur/krabbameinsskra/"},{"label":"European Network of Cancer Registries: members contact list (Iceland)","url":"https://www.encr.eu/encr-members-contact-list"}],"tags":[],"related":["cancer-registries-surveillance"],"cancers":[],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":["landspitali","university-of-iceland"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Reykjavík","country":"IS","lat":64.134,"lng":-21.921,"institutionType":"research-institute","website":"https://www.krabb.is/rannsoknasetur/krabbameinsskra/","programs":["Population-based cancer registration (from 1955)","Annual cancer statistics"]},"route":"/institutions/icelandic-cancer-registry/","neighbours":{"technology":[{"id":"cancer-registries-surveillance","kind":"technology","name":"Cancer registries and population surveillance","route":"/technologies/cancer-registries-surveillance/"}],"institution":[{"id":"university-of-iceland","kind":"institution","name":"Háskóli Íslands","route":"/institutions/university-of-iceland/"},{"id":"landspitali","kind":"institution","name":"Landspítali, the National University Hospital of Iceland","route":"/institutions/landspitali/"}]}}