{"entity":{"id":"pheo-para-alliance","kind":"institution","name":"Pheo Para Alliance","aka":["PPA"],"tldr":"An international patient organisation for pheochromocytoma and paraganglioma, founded in 2007, with peer support, education webinars, a centres of excellence programme and research funding.","summary":"The Pheo Para Alliance was founded in 2007 and calls itself the longest-standing internationally recognised advocacy organisation for pheochromocytoma and paraganglioma (PPGL), according to its about page, which says it has given more than $2 million to research, diagnosis, education, advocacy and the search for a cure. Its programmes include a Center of Excellence Program, an education webinar series, national and regional conferences, one-to-one and monthly peer support and patient-centred research. Its educational material is reviewed by a medical advisory board of PPGL specialists. It states that it is a 501(c)(3) incorporated in Virginia; the IRS lists a Pheo Para Patient Initiative Incorporated in Free Union, Virginia, with tax exemption from August 2010.","asOf":"2026-11-05","links":[{"label":"Pheo Para Alliance: about","url":"https://pheopara.org/about/thealliance"},{"label":"Pheo Para Alliance home page","url":"https://pheopara.org/"},{"label":"IRS record (via ProPublica Nonprofit Explorer)","url":"https://projects.propublica.org/nonprofits/organizations/272423774"}],"tags":[],"related":["rare-cancer-research-foundation"],"cancers":["pheochromocytoma-paraganglioma"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":["The IRS record is matched on name and state: the alliance says it is incorporated in Virginia, and the only Virginia exempt organisation with a matching name is Pheo Para Patient Initiative Incorporated. The site does not state its EIN."],"city":"Free Union, VA","country":"US","lat":38.131,"lng":-78.567,"institutionType":"consortium","website":"https://pheopara.org","programs":["Center of Excellence Program","Education webinar series","Monthly and one-to-one peer support","National and regional conferences","Research funding"]},"route":"/institutions/pheo-para-alliance/","neighbours":{"institution":[{"id":"rare-cancer-research-foundation","kind":"institution","name":"Rare Cancer Research Foundation","route":"/institutions/rare-cancer-research-foundation/"}],"cancer":[{"id":"pheochromocytoma-paraganglioma","kind":"cancer","name":"Pheochromocytoma and paraganglioma (PPGL)","route":"/cancers/pheochromocytoma-paraganglioma/"}]}}