{"entity":{"id":"pseudomyxoma-survivor","kind":"institution","name":"Pseudomyxoma Survivor","aka":[],"tldr":"A UK charity run by patients and carers, founded in 2011, that offers peer support and patient-written, specialist-reviewed information to anyone affected by pseudomyxoma peritonei or appendix cancer.","summary":"Pseudomyxoma Survivor describes itself as a non-profit organisation run entirely by volunteer patients and caregivers, with a support community for anyone affected by pseudomyxoma peritonei (PMP), appendix cancer and other peritoneal surface malignancies, according to its about page. The same page says it was founded in 2011 by Dawn Green, who had found no patient support organisation for PMP in the UK, and that its information is written by patients and reviewed by a medical advisory board of PMP and appendix cancer experts. It funds small grants to help patients and caregivers with the impact of treatment, advocates for patients as a group at congresses, and is a member of EURORDIS and Cancer52. Its patron is Sean Hepburn Ferrer. It states that it is a registered charity in England and Wales, number 1143642, and gives a postal address in Ellerton, near York.","asOf":"2026-11-05","links":[{"label":"About Pseudomyxoma Survivor","url":"https://www.pseudomyxomasurvivor.org/about-pseudomyxoma-survivor/"},{"label":"Pseudomyxoma Survivor contact page (address)","url":"https://www.pseudomyxomasurvivor.org/contact-us/"}],"tags":["uk"],"related":["eurordis","pmp-pals","appendix-cancer-connection"],"cancers":["appendiceal","low-grade-appendiceal-mucinous-neoplasm","appendiceal-adenocarcinoma"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"York","country":"GB","lat":53.958,"lng":-1.082,"institutionType":"consortium","website":"https://www.pseudomyxomasurvivor.org","programs":["Online peer support community","Patient-written information reviewed by a medical advisory board","Small grants for patients and caregivers","Group advocacy at medical congresses"]},"route":"/institutions/pseudomyxoma-survivor/","neighbours":{"institution":[{"id":"appendix-cancer-connection","kind":"institution","name":"Appendix Cancer Connection","route":"/institutions/appendix-cancer-connection/"},{"id":"eurordis","kind":"institution","name":"EURORDIS-Rare Diseases Europe","route":"/institutions/eurordis/"},{"id":"pmp-pals","kind":"institution","name":"PMP Pals","route":"/institutions/pmp-pals/"}],"cancer":[{"id":"appendiceal-adenocarcinoma","kind":"cancer","name":"Appendiceal adenocarcinoma (mucinous and non-mucinous, including signet ring cell)","route":"/cancers/appendiceal-adenocarcinoma/"},{"id":"appendiceal","kind":"cancer","name":"Appendiceal cancer and pseudomyxoma peritonei","route":"/cancers/appendiceal/"},{"id":"low-grade-appendiceal-mucinous-neoplasm","kind":"cancer","name":"Low-grade appendiceal mucinous neoplasm and pseudomyxoma peritonei","route":"/cancers/low-grade-appendiceal-mucinous-neoplasm/"}]}}