{"entity":{"id":"rein-in-sarcoma","kind":"institution","name":"Rein in Sarcoma","aka":["Karen Wyckoff Rein In Sarcoma","RIS"],"tldr":"A Minnesota sarcoma charity, founded in 2001, that supports patients and families, runs education programmes and funds sarcoma research at Minnesota institutions.","summary":"Rein in Sarcoma says it was founded in Minnesota in 2001 and began with a fundraising event held for Karen Wyckoff, who died of synovial sarcoma a month after the first event. Its about page describes a three-part mission of educating the public and the medical community about sarcoma, supporting patients and their families, and funding research. Its research page says it has funded nearly $2 million of sarcoma research, mainly at the University of Minnesota and, since 2017, also at Mayo Clinic and Children's Minnesota, and that this work has led to more than $13 million in further grants; funded projects listed include work on rhabdomyosarcoma, CIC::DUX4 sarcoma, DICER1-related sarcomas and Ewing sarcoma. The IRS lists it as Karen Wyckoff Rein In Sarcoma, a 501(c)(3) charity in Fridley, Minnesota.","asOf":"2026-11-05","links":[{"label":"About Rein in Sarcoma","url":"https://reininsarcoma.org/about-rein-in-sarcoma/"},{"label":"Rein in Sarcoma: research","url":"https://reininsarcoma.org/research/"},{"label":"IRS record (via ProPublica Nonprofit Explorer)","url":"https://projects.propublica.org/nonprofits/organizations/200811343"}],"tags":[],"related":["rare-cancer-research-foundation"],"cancers":["sarcoma","synovial-sarcoma","rhabdomyosarcoma","ewing-sarcoma"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":["minnesota-masonic","mayo-clinic","childrens-minnesota-cancer-blood"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Fridley, MN","country":"US","lat":45.086,"lng":-93.263,"institutionType":"consortium","website":"https://reininsarcoma.org","programs":["Sarcoma research grants at Minnesota institutions","Education for the public and medical community","Patient and survivor events and support"]},"route":"/institutions/rein-in-sarcoma/","neighbours":{"institution":[{"id":"childrens-minnesota-cancer-blood","kind":"institution","name":"Children's Minnesota Cancer and Blood Disorders Program","route":"/institutions/childrens-minnesota-cancer-blood/"},{"id":"minnesota-masonic","kind":"institution","name":"Masonic Cancer Center, University of Minnesota","route":"/institutions/minnesota-masonic/"},{"id":"mayo-clinic","kind":"institution","name":"Mayo Clinic","route":"/institutions/mayo-clinic/"},{"id":"rare-cancer-research-foundation","kind":"institution","name":"Rare Cancer Research Foundation","route":"/institutions/rare-cancer-research-foundation/"}],"cancer":[{"id":"ewing-sarcoma","kind":"cancer","name":"Ewing sarcoma","route":"/cancers/ewing-sarcoma/"},{"id":"rhabdomyosarcoma","kind":"cancer","name":"Rhabdomyosarcoma","route":"/cancers/rhabdomyosarcoma/"},{"id":"sarcoma","kind":"cancer","name":"Sarcomas (soft tissue, bone, GIST)","route":"/cancers/sarcoma/"},{"id":"synovial-sarcoma","kind":"cancer","name":"Synovial sarcoma","route":"/cancers/synovial-sarcoma/"}]}}