{"entity":{"id":"roy-castle-lung-cancer-foundation","kind":"institution","name":"Roy Castle Lung Cancer Foundation","aka":[],"tldr":"The only UK charity that works on lung cancer alone: a nurse-answered helpline, information days and support groups around the country, research fellowships, and the campaigning that pushed the NHS towards a national screening programme.","summary":"Roy Castle Lung Cancer Foundation (registered charity 1046854 in England and Wales, SC037596 in Scotland and 1277 in the Isle of Man, a company limited by guarantee registered as 03059425, at the Cotton Exchange Building, Old Hall Street, Liverpool) describes itself as the only UK charity dedicated exclusively to supporting everyone affected by lung cancer. It runs the free Ask the Nurse helpline on 0800 358 7200, staffed by experienced lung cancer nurses, and the Keep in Touch service, which gives a person or their carer fortnightly calls for up to twelve sessions; it holds free information days around the UK with oncologists, thoracic surgeons, nurses, physiotherapists and dietitians, and supports nurse-led local groups.\n\nIts history is a research history. The Liverpool thoracic surgeon Ray Donnelly set up the Lung Cancer Fund on 18 April 1990 after failing to persuade anyone else to pay for work on early detection; the first grant, in May 1993, went to the study of early genetic changes in lung cancer. Roy Castle's Tour of Hope raised a million pounds in 1994 towards what became the world's first lung cancer research centre, opened in May 1998, and the following year the charity paid for the first UK mobile laboratory to recruit high-risk people into screening. It has funded clinical research fellowships since 2012 and is named in the funding statement of the UK Lung Cancer Screening trial's mortality paper. Its campaigns address the thing that makes lung cancer different: Let Go of the Labels argues that the words smoker and never-smoker distort what is going on and deny people an earlier diagnosis, and its policy asks include that no one should wait longer than 14 days for genomic testing.","asOf":"2026-09-25","links":[{"label":"Roy Castle Lung Cancer Foundation","url":"https://roycastle.org/"},{"label":"Telephone support","url":"https://roycastle.org/our-support/telephone-support/"},{"label":"Research","url":"https://roycastle.org/about-us/research/"},{"label":"Campaigns","url":"https://roycastle.org/about-us/campaigns/"},{"label":"Useful contacts and support organisations","url":"https://roycastle.org/our-support/useful-contacts-and-support-organisations/"}],"tags":["charity","uk","lung"],"related":[],"cancers":["nsclc","sclc","lung-cancer"],"sections":["early-detection"],"technologies":["low-dose-ct-screening"],"targets":[],"drugs":[],"companies":[],"institutions":["macmillan-cancer-support"],"pathways":[],"terms":[],"trials":[],"people":["john-field"],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Liverpool","country":"GB","lat":53.411,"lng":-2.994,"institutionType":"consortium","website":"https://roycastle.org/","programs":["Ask the Nurse helpline, 0800 358 7200","Keep in Touch telephone support","Information days and nurse-led support groups across the UK","Lung cancer clinical research fellowships","Self-request chest X-ray resource hub for commissioners","Let Go of the Labels and This is Lung Cancer campaigns"]},"route":"/institutions/roy-castle-lung-cancer-foundation/","neighbours":{"cancer":[{"id":"lung-cancer","kind":"cancer","name":"Lung cancer (all types)","route":"/cancers/lung-cancer/"},{"id":"nsclc","kind":"cancer","name":"Non-small-cell lung cancer","route":"/cancers/nsclc/"},{"id":"sclc","kind":"cancer","name":"Small-cell lung cancer","route":"/cancers/sclc/"}],"section":[{"id":"early-detection","kind":"section","name":"Early Detection & Screening","route":"/fronts/early-detection/"}],"technology":[{"id":"low-dose-ct-screening","kind":"technology","name":"Low-dose CT lung screening","route":"/technologies/low-dose-ct-screening/"}],"institution":[{"id":"macmillan-cancer-support","kind":"institution","name":"Macmillan Cancer Support","route":"/institutions/macmillan-cancer-support/"}],"person":[{"id":"john-field","kind":"person","name":"John Field","route":"/people/john-field/"}],"trial":[{"id":"ukls","kind":"trial","name":"UKLS","route":"/trials/ukls/"}]}}