{"entity":{"id":"sarcoma-patient-advocacy-global-network","kind":"institution","name":"Sarcoma Patient Advocacy Global Network","aka":["SPAGN","Sarcoma Patients EuroNet"],"tldr":"The global network of national sarcoma patient groups, registered in Germany, with more than 80 member groups on five continents.","summary":"The Sarcoma Patient Advocacy Global Network describes itself as the global network of national sarcoma patient advocacy organisations, with more than 80 member groups from five continents, working to improve treatment and care through information and support and by raising the visibility of sarcoma with policymakers and the public. It is a registered association under German law (e.V., register number VR 2609 at Friedberg) with an address in Wölfersheim. The address of its earlier name, Sarcoma Patients EuroNet (sarcoma-patients.eu), now serves its site.","asOf":"2026-11-04","links":[{"label":"SPAGN: who we are","url":"https://www.sarcoma-patients.org/who-we-are/"},{"label":"SPAGN imprint (registration)","url":"https://www.sarcoma-patients.org/imprint/"},{"label":"SPAGN","url":"https://www.sarcoma-patients.org/"}],"tags":[],"related":["life-raft-group"],"cancers":["sarcoma"],"sections":[],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":[],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"city":"Wölfersheim","country":"DE","lat":50.4,"lng":8.811,"institutionType":"consortium","website":"https://www.sarcoma-patients.org","programs":["Annual conference","Sarcoma awareness campaigns","Research projects and patient surveys","Lifetime Achievement Awards"]},"route":"/institutions/sarcoma-patient-advocacy-global-network/","neighbours":{"institution":[{"id":"national-leiomyosarcoma-foundation","kind":"institution","name":"National Leiomyosarcoma Foundation","route":"/institutions/national-leiomyosarcoma-foundation/"},{"id":"life-raft-group","kind":"institution","name":"The Life Raft Group","route":"/institutions/life-raft-group/"}],"cancer":[{"id":"sarcoma","kind":"cancer","name":"Sarcomas (soft tissue, bone, GIST)","route":"/cancers/sarcoma/"}]}}