# OnCo record b-patient-voice (bottleneck). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/bottlenecks/b-patient-voice/>
  a schema:Thing ;
  onco:kind "bottleneck" ;
  schema:identifier "b-patient-voice" ;
  schema:name "Patients lack understanding, navigation and agency"@en ;
  schema:description "Most patients cannot understand their options, find trials, or push back, so decisions are made for them."@en ;
  schema:url <https://onco.cc/bottlenecks/b-patient-voice/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://doi.org/10.1001/jama.2017.7156>, <https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients>, <https://healthcaredelivery.cancer.gov/pro-ctcae/>, <https://www.fda.gov/drugs/development-approval-process-drugs/fda-patient-focused-drug-development-guidance-series-enhancing-incorporation-patients-voice-medical> ;
  onco:related <https://onco.cc/collections/cancer-gov-pdq/>, <https://onco.cc/collections/nccn/>, <https://onco.cc/collections/clinicaltrials-gov/>, <https://onco.cc/ideas/idea-moon-navigation-as-a-right/>, <https://onco.cc/ideas/idea-moon-plain-language-consent/>, <https://onco.cc/ideas/idea-moon-results-in-plain-words/>, <https://onco.cc/ideas/idea-moon-certified-decision-aids/>, <https://onco.cc/ideas/idea-moon-patient-designed-trials/>, <https://onco.cc/ideas/idea-moon-financial-toxicity-screening/>, <https://onco.cc/ideas/idea-moon-goals-conversation-trigger/>, <https://onco.cc/ideas/idea-moon-patient-held-cancer-record/>, <https://onco.cc/ideas/idea-moon-funded-second-opinion/>, <https://onco.cc/ideas/idea-moon-recorded-consultations/>, <https://onco.cc/ideas/idea-moon-question-prompt-lists/>, <https://onco.cc/ideas/idea-moon-patient-experience-label/>, <https://onco.cc/ideas/idea-moon-results-back-to-participants/>, <https://onco.cc/ideas/idea-moon-peer-navigator-workforce/>, <https://onco.cc/ideas/idea-moon-time-toxicity-reporting/>, <https://onco.cc/ideas/idea-moon-preference-studies-before-phase3/>, <https://onco.cc/ideas/idea-moon-caregiver-in-the-plan/>, <https://onco.cc/ideas/idea-moon-literacy-first-design-standard/>, <https://onco.cc/ideas/idea-moon-trial-eligibility-at-every-decision/> ;
  onco:technologies <https://onco.cc/technologies/ai-trial-matching/> ;
  onco:companies <https://onco.cc/companies/cancer-commons/>, <https://onco.cc/companies/more-health/>, <https://onco.cc/companies/patient-data-vault/>, <https://onco.cc/companies/tempus/> ;
  onco:institutions <https://onco.cc/institutions/asco/>, <https://onco.cc/institutions/nccn-org/>, <https://onco.cc/institutions/nci/> ;
  onco:terms <https://onco.cc/terms/orr/>, <https://onco.cc/terms/pfs/>, <https://onco.cc/terms/os/>, <https://onco.cc/terms/standard-of-care/> .