# OnCo record idea-acc-national-late-effects-registry (idea). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/ideas/idea-acc-national-late-effects-registry/>
  a schema:CreativeWork ;
  onco:kind "idea" ;
  schema:identifier "idea-acc-national-late-effects-registry" ;
  schema:name "A national late-effects registry linking treatment exposures to outcomes decades later"@en ;
  schema:description "We know surprisingly little about what happens to cancer survivors twenty years on. Linking their treatment records to later health records would show which treatments cause which problems and who needs watching."@en ;
  schema:url <https://onco.cc/ideas/idea-acc-national-late-effects-registry/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://cancercontrol.cancer.gov/ocs/statistics> ;
  onco:related <https://onco.cc/collections/seer/> ;
  onco:technologies <https://onco.cc/technologies/checkpoint-inhibitor/> ;
  onco:bottlenecks <https://onco.cc/bottlenecks/b-survivorship/>, <https://onco.cc/bottlenecks/b-real-world-evidence/>, <https://onco.cc/bottlenecks/b-data-silos/> .