# OnCo record idea-bio2-patient-partnered-rare-commons (idea). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/ideas/idea-bio2-patient-partnered-rare-commons/>
  a schema:CreativeWork ;
  onco:kind "idea" ;
  schema:identifier "idea-bio2-patient-partnered-rare-commons" ;
  schema:name "Let patients themselves donate their records and samples for ultra-rare cancers"@en ;
  schema:description "Patients with ultra-rare cancers are scattered across countries, beyond any single hospital's reach. Patient-driven projects that recruit online, post saliva and tumour sample kits and release data openly have already produced genomic findings in angiosarcoma; sustainability and international consent rules are the open problems."@en ;
  schema:url <https://onco.cc/ideas/idea-bio2-patient-partnered-rare-commons/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://doi.org/10.1016/j.ejca.2011.08.008> ;
  onco:related <https://onco.cc/collections/cbioportal/>, <https://onco.cc/collections/genie/>, <https://onco.cc/collections/cancer-models/> ;
  onco:cancers <https://onco.cc/cancers/sarcoma/> ;
  onco:technologies <https://onco.cc/technologies/wes-wgs/> ;
  onco:institutions <https://onco.cc/institutions/broad-institute/>, <https://onco.cc/institutions/dana-farber/> ;
  onco:bottlenecks <https://onco.cc/bottlenecks/b-rare-cancers/>, <https://onco.cc/bottlenecks/b-data-silos/>, <https://onco.cc/bottlenecks/b-patient-voice/> ;
  onco:keyPapers <https://onco.cc/key-papers/paper-gatta-eur-j-cancer/> .