# OnCo record idea-data-cross-border-rare-cancer-pool (idea). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/ideas/idea-data-cross-border-rare-cancer-pool/>
  a schema:CreativeWork ;
  onco:kind "idea" ;
  schema:identifier "idea-data-cross-border-rare-cancer-pool" ;
  schema:name "One legal framework for pooling rare cancer data across borders"@en ;
  schema:description "Rare cancers are too uncommon for any one country to learn from alone, and national legal differences stop registries pooling records. A standing framework with a common data model, one joint controller agreement, federated queries and GA4GH access passports would let rare cancer registries in the EU, UK, US and Asia be queried as one, then extended to LMIC partners."@en ;
  schema:url <https://onco.cc/ideas/idea-data-cross-border-rare-cancer-pool/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://euracan.eu/> ;
  onco:cancers <https://onco.cc/cancers/sarcoma/>, <https://onco.cc/cancers/mesothelioma/> ;
  onco:sections <https://onco.cc/fronts/ai-computation/> ;
  onco:bottlenecks <https://onco.cc/bottlenecks/b-data-silos/>, <https://onco.cc/bottlenecks/b-rare-cancers/> .