# OnCo record idea-data-registry-follow-up-of-trial-participants (idea). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/ideas/idea-data-registry-follow-up-of-trial-participants/>
  a schema:CreativeWork ;
  onco:kind "idea" ;
  schema:identifier "idea-data-registry-follow-up-of-trial-participants" ;
  schema:name "Follow every trial participant for 30 years through registry linkage"@en ;
  schema:description "Trials stop following patients after a few years, so late side effects and late relapses are missed. Link trial participants to national records so follow-up continues automatically for decades."@en ;
  schema:url <https://onco.cc/ideas/idea-data-registry-follow-up-of-trial-participants/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://doi.org/10.1001/jamainternmed.2019.0462> ;
  onco:related <https://onco.cc/ideas/idea-data-trial-to-registry-bridge/> ;
  onco:sections <https://onco.cc/fronts/ai-computation/> ;
  onco:companies <https://onco.cc/companies/childrens-oncology-group/>, <https://onco.cc/companies/swog/>, <https://onco.cc/companies/ecog-acrin/> ;
  onco:bottlenecks <https://onco.cc/bottlenecks/b-real-world-evidence/>, <https://onco.cc/bottlenecks/b-survivorship/>, <https://onco.cc/bottlenecks/b-trial-design/> ;
  onco:keyPapers <https://onco.cc/key-papers/paper-gyawali-jama-intern-med/> .