# OnCo record idea-tr1-registry-linked-os-followup (idea). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)". Whole corpus: https://onco.cc/api/v1/onco.nt
@prefix schema: <https://schema.org/> .
@prefix onco: <https://onco.cc/ns#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

<https://onco.cc/ideas/idea-tr1-registry-linked-os-followup/>
  a schema:CreativeWork ;
  onco:kind "idea" ;
  schema:identifier "idea-tr1-registry-linked-os-followup" ;
  schema:name "Cheap long-term survival follow-up by linking trial participants to registries"@en ;
  schema:description "Trials often stop following patients once the main result is in, so we never learn whether the drug extended life. Linking participants to national death and cancer registries costs almost nothing and would answer that question."@en ;
  schema:url <https://onco.cc/ideas/idea-tr1-registry-linked-os-followup/> ;
  schema:dateModified "2026-09-08"^^xsd:date ;
  schema:citation <https://www.fda.gov/about-fda/oncology-center-excellence/project-confirm> ;
  onco:related <https://onco.cc/collections/seer/> ;
  onco:terms <https://onco.cc/terms/os/>, <https://onco.cc/terms/accelerated-approval/> ;
  onco:bottlenecks <https://onco.cc/bottlenecks/b-trial-design/>, <https://onco.cc/bottlenecks/b-real-world-evidence/> .