{"slug":"cohort","tag":"cohort","variants":["cohort"],"description":"No description yet","count":3,"kinds":{"collection":3},"related":[{"slug":"late-effects","tag":"late-effects","shared":3},{"slug":"paediatric","tag":"paediatric","shared":3},{"slug":"rejuvenation","tag":"rejuvenation","shared":3},{"slug":"survivorship","tag":"survivorship","shared":3},{"slug":"europe","tag":"europe","shared":1},{"slug":"uk","tag":"uk","shared":1}],"records":[{"id":"sjlife","kind":"collection","name":"St Jude Lifetime Cohort Study (SJLIFE)","route":"/collections/sjlife/","tldr":"The study that brought survivors back to a hospital and tested them, rather than asking them what was wrong. It found that most of what it found had not been diagnosed: by age 45, on clinical testing, 95.5 per cent of survivors had a chronic health condition and 80.5 per cent had a serious, disabling or life-threatening one."},{"id":"bccss","kind":"collection","name":"British Childhood Cancer Survivor Study (BCCSS)","route":"/collections/bccss/","tldr":"Britain's own survivor cohort, built on national registration rather than on hospital volunteers, which is why it can follow people for half a century and count deaths that nobody reported. Its central finding is that what kills survivors changes with time: recurrence early, second cancers and heart disease late."},{"id":"pancaresurfup","kind":"collection","name":"PanCareSurFup and the European survivor cohorts","route":"/collections/pancaresurfup/","tldr":"Europe's answer to the American cohorts: thirteen data providers in twelve countries pooled their records to build what its own authors call the largest cohort of children with cancer to date, 83,333 five-year survivors, so that second cancers and heart disease could be counted on a continent that keeps its data in national pieces."}]}