Make a population cancer registry a condition of every cancer aid programme
You cannot fix what you cannot count. Every donor-funded cancer programme should fund and require a population-based cancer registry so results can be measured over time.
Fewer than one in five people in Africa are covered by a high-quality population-based cancer registry, so GLOBOCAN estimates for many countries are extrapolations. Registries are cheap relative to treatment programmes and are the only way to see stage shift, survival, and coverage. The proposal is a coordinated donor policy: a fixed percentage of every cancer grant supports a registry meeting IARC Global Initiative for Cancer Registry Development standards, with data deposited in the Global Cancer Observatory.
- Most of the world has almost no cancer care · Seven in ten cancer deaths happen in low- and middle-income countries, where radiotherapy, pathology, surgery and drugs are scarce.
- Weak real-world evidence and registries · We do not reliably know what happens to patients after approval, so we cannot tell which drugs deliver in practice.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
Pages like this
not linked directly; found by shared links- IdeaA public map of trial deserts to steer where new sites open
Shares GLOBOCAN / Global Cancer Observatory, SEER (Surveillance, Epidemiology, and End Results), International Agency for Research on Cancer (IARC / WHO), Data silos.
- IdeaA public tracker of how long each country takes to adopt new evidence
Shares GLOBOCAN / Global Cancer Observatory, SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries.
- IdeaOpen-source cancer registry-in-a-box for low-resource settings
Shares GLOBOCAN / Global Cancer Observatory, International Agency for Research on Cancer (IARC / WHO), Data silos, Most of the world has almost no cancer care.
- IdeaAn open global model of cancer workforce supply and demand by country
Shares GLOBOCAN / Global Cancer Observatory, International Agency for Research on Cancer (IARC / WHO), Data silos.
- IdeaA dedicated global financing window for cancer, modelled on the Global Fund
Shares GLOBOCAN / Global Cancer Observatory, International Agency for Research on Cancer (IARC / WHO), Most of the world has almost no cancer care.
- IdeaAutomatic weekly linkage of cancer registries to deaths, prescriptions and imaging
Shares SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
- IdeaA national late-effects registry linking treatment exposures to outcomes decades later
Shares SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
- IdeaPublic country dashboards for the three WHO breast cancer targets
Shares GLOBOCAN / Global Cancer Observatory, Weak real-world evidence and registries, Most of the world has almost no cancer care.