Mandatory machine-readable portfolio reporting for all large cancer funders
Every funder that spends more than $50 million a year on cancer research would publish what it funds in a shared, coded database, so gaps and duplication can be seen across the whole system.
The International Cancer Research Partnership already codes members' portfolios by cancer type and Common Scientific Outline category, but participation is voluntary and misses most industry-funded academic work, Chinese and many European funders. Governments and umbrella bodies would require reporting as a condition of charitable tax status or public co-funding, with a common ontology, award-level data and outputs linked (publications, trials, patents). Coverage is what turns a nice database into a planning tool.
- Funding follows fashion, not burden · Money goes to the cancers and questions that are easy or popular, not the ones that kill most or where a dollar would do most.
- Data silos · Records, scans, genomes and outcomes sit in separate systems that cannot talk. Every patient's experience is lost to the next.
Pages like this
not linked directly; found by shared links- IdeaJudge funding programme officers on burden alignment and trials completed
Shares Burden-weighted portfolio targets for every major cancer funder, Funding follows fashion, not burden, Cancer Research UK, National Cancer Institute (NIH).
- IdeaPublish per-patient trial cost benchmarks and target halving them
Shares Funding follows fashion, not burden, Cancer Research UK, National Cancer Institute (NIH).
- IdeaA public registry of unanswered clinical questions linked to funding calls
Shares Funding follows fashion, not burden, Cancer Research UK, National Cancer Institute (NIH).
- IdeaRing-fence a fifth of national cancer research money for metastasis
Shares Funding follows fashion, not burden, Cancer Research UK, National Cancer Institute (NIH).
- IdeaA formal patient-burden score in grant peer review
Shares Burden-weighted portfolio targets for every major cancer funder, Funding follows fashion, not burden.
- IdeaAn annual map of high-burden questions that nobody is funding
Shares A public dashboard of research money per death for every cancer, Funding follows fashion, not burden.
- InstitutionWorldwide Cancer Research
Shares Funding follows fashion, not burden, Cancer Research UK.
- IdeaRandomised trials of how to spread proven cancer treatments, not just what works
Shares Funding follows fashion, not burden, National Cancer Institute (NIH).