A formal patient-burden score in grant peer review
Add a scored criterion to grant review that asks how much suffering the proposal addresses and how soon, judged partly by patients, and give it real weight.
Peer review currently scores significance, innovation and approach, which reward novelty and technical elegance. A burden criterion (deaths, DALYs and unmet need in the target population, plausible time to patient impact) is scored separately by a panel that includes trained patient reviewers and carries 20% of the total. The Patient-Centered Outcomes Research Institute and the US Department of Defense cancer programmes already include consumer reviewers; this makes burden an explicit, weighted term.
- Funding follows fashion, not burden · Money goes to the cancers and questions that are easy or popular, not the ones that kill most or where a dollar would do most.
- Patients lack understanding, navigation and agency · Most patients cannot understand their options, find trials, or push back, so decisions are made for them.
Pages like this
not linked directly; found by shared links- PersonRandy Pausch
Shares Funding follows fashion, not burden, Patients lack understanding, navigation and agency.
- IdeaJudge funding programme officers on burden alignment and trials completed
Shares Burden-weighted portfolio targets for every major cancer funder, Funding follows fashion, not burden.
- IdeaA public registry of unanswered clinical questions linked to funding calls
Shares Funding follows fashion, not burden, Patients lack understanding, navigation and agency.
- IdeaMandatory machine-readable portfolio reporting for all large cancer funders
Shares Burden-weighted portfolio targets for every major cancer funder, Funding follows fashion, not burden.
- PersonFran Visco
Shares Funding follows fashion, not burden, Patients lack understanding, navigation and agency.
- IdeaA public dashboard of research money per death for every cancer
Shares Burden-weighted portfolio targets for every major cancer funder, Funding follows fashion, not burden.
- PersonDame Deborah James
Shares Funding follows fashion, not burden, Patients lack understanding, navigation and agency.