Appointment sheet
Adamantinoma of bone
Prepared with OnCo (onco.cc/prep/adamantinoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
7 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Cytokeratin-positive epithelial nests in fibro-osseous stroma, Anterior tibial cortical location on imaging, Margin status after resection), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All cases
- 5.For my situation (all cases), which of the standard options do you recommend and why?
Any stage
- 6.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 7.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: Cytokeratin-positive epithelial nests in fibro-osseous stroma, Anterior tibial cortical location on imaging, Margin status after resection.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All cases: Wide en bloc resection with reconstruction; no chemotherapy or radiotherapy; decades of follow-up for late recurrence and lung metastasis. (Sarcomas (soft tissue, bone, GIST))
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call