Appointment sheet
Bartholin gland carcinoma
Prepared with OnCo (onco.cc/prep/bartholin-gland-carcinoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
7 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Histological type, Perineural and lymphatic invasion, Inguinofemoral node status, HPV and p16 in the squamous type), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All types
- 5.For my situation (all types), which of the standard options do you recommend and why?
Any stage
- 6.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 7.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- Chemoradiation (chemoradiotherapy, CRT): Radiotherapy given at the same time as chemotherapy, which sensitises the cancer to radiation.
Tests and results to bring
Biomarker results to ask for: Histological type (squamous, adenoid cystic, adenocarcinoma), Perineural and lymphatic invasion (adenoid cystic), Inguinofemoral node status, HPV and p16 in the squamous type.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All types: Wide or radical excision with node assessment; postoperative radiotherapy for close margins, nodes or adenoid cystic histology; chemoradiation for advanced disease as on the vulvar cancer page. (Vulvar cancer, HPV-associated vulvar squamous cell carcinoma, Chemoradiation (chemoradiotherapy, CRT))
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call