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Living with cancer· Appointment prep

Appointment sheet: Clear cell ovarian cancer

One page to bring and write on: your details, the questions for Clear cell ovarian cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Clear cell ovarian cancer

Prepared with OnCo (onco.cc/prep/clear-cell-ovarian-cancer/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

14 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example ARID1A mutation, PIK3CA mutation, HNF1B expression, Mismatch repair deficiency, Wild-type TP53), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Early stage
  1. 5.For my situation (early stage), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Carboplatin, Paclitaxel / nab-paclitaxel, and what side effects should I expect?
Advanced or recurrent
  1. 7.For my situation (advanced or recurrent), which of the standard options do you recommend and why?
  2. 8.Am I a candidate for Pembrolizumab, and what side effects should I expect?
Supportive
  1. 9.For my situation (supportive), which of the standard options do you recommend and why?
Any stage
  1. 10.Are there clinical trials I could join, for example of ATR and CHK1 inhibitors, Pembrolizumab?
  2. 11.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 12.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 13.I read that “No effective treatment for platinum-resistant disease”. How does that affect my plan?
  5. 14.I read that “Which early-stage patients can skip chemotherapy”. How does that affect my plan?

Tests and results to bring

Biomarker results to ask for: ARID1A mutation (about 50 percent), PIK3CA mutation, HNF1B expression (diagnostic), Mismatch repair deficiency (a minority), Wild-type TP53.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

  • Early stage: Complete staging surgery; adjuvant carboplatin-paclitaxel for stage IC and above; observation may be considered for stage IA. (Carboplatin, Paclitaxel / nab-paclitaxel)
  • Advanced or recurrent: Cytoreduction and platinum-based chemotherapy despite modest responses; clinical trials of immunotherapy and ARID1A-directed drugs are preferred where available. (Pembrolizumab, ATR and CHK1 inhibitors)
  • Supportive: Thromboprophylaxis awareness because of the high clot risk. (Ovarian cancer)

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call