Appointment sheet
Clear cell papillary renal cell tumour
Prepared with OnCo (onco.cc/prep/clear-cell-papillary-renal-cell-tumour/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
7 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Strong CK7 and cup-shaped carbonic anhydrase IX staining; CD10 and AMACR negative, No VHL mutation or 3p loss, Low gradeand pT1 stage, End-stage renal disease), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All cases
- 5.For my situation (all cases), which of the standard options do you recommend and why?
Any stage
- 6.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 7.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- Nephrectomy: Removing a kidney (radical) or just the tumour-bearing part of it (partial).
Tests and results to bring
Biomarker results to ask for: Strong CK7 and cup-shaped carbonic anhydrase IX staining; CD10 and AMACR negative, No VHL mutation or 3p loss, Low grade (WHO/ISUP 1 or 2) and pT1 stage, End-stage renal disease.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All cases: Partial nephrectomy or active surveillance of a small mass; no systemic therapy. (Renal cell carcinoma, Nephrectomy, Clear cell renal cell carcinoma)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call