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Living with cancer· Appointment prep

Appointment sheet: Cutaneous squamous cell carcinoma

One page to bring and write on: your details, the questions for Cutaneous squamous cell carcinoma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Cutaneous squamous cell carcinoma

Prepared with OnCo (onco.cc/prep/cutaneous-scc/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

16 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example BWH and AJCC-8 T stage, Perineural invasion, depth beyond fat, differentiation, Immunosuppression status, Gene-expression prognostic test, PD-L1), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Localised low- and high-risk
  1. 5.For my situation (localised low- and high-risk), which of the standard options do you recommend and why?
High-risk after surgery and radiotherapy
  1. 6.For my situation (high-risk after surgery and radiotherapy), which of the standard options do you recommend and why?
  2. 7.Am I a candidate for Cemiplimab, and what side effects should I expect?
Locally advanced or metastatic
  1. 8.For my situation (locally advanced or metastatic), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Cemiplimab, Pembrolizumab, Cosibelimab, and what side effects should I expect?
Immunotherapy-ineligible or refractory
  1. 10.For my situation (immunotherapy-ineligible or refractory), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Cetuximab, Carboplatin, Vusolimogene oderparepvec, and what side effects should I expect?
Any stage
  1. 12.Are there clinical trials I could join, for example of Cemiplimab, Cosibelimab, Vusolimogene oderparepvec, HMBD-001?
  2. 13.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 14.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 15.I read that “Organ-transplant recipients: high incidence, no safe immunotherapy”. How does that affect my plan?
  5. 16.I read that “Who needs adjuvant therapy: gene-expression tests vs clinicopathologic staging”. How does that affect my plan?

The words I may hear

Tests and results to bring

Biomarker results to ask for: BWH and AJCC-8 T stage, Perineural invasion, depth beyond fat, differentiation, Immunosuppression status, Gene-expression prognostic test (40-GEP, DecisionDx-SCC), PD-L1 (not required), TMB (very high).

Scans and tests linked to this cancer: Dermoscopy, total-body photography & AI skin analysis, Skin cancer screening (visual skin examination).

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

  • Localised low- and high-risk: Excision with margin control or Mohs micrographic surgery; adjuvant radiotherapy for high-risk features (perineural invasion, positive margins); nodal evaluation for very high risk. (IMRT / IGRT (modern external beam), Sentinel lymph node biopsy)
  • High-risk after surgery and radiotherapy: Adjuvant cemiplimab (C-POST, 2025: reduced locoregional and distant recurrence). (Cemiplimab)
  • Locally advanced or metastatic: Cemiplimab, pembrolizumab or cosibelimab; neoadjuvant cemiplimab for resectable stage II-IV to shrink surgery (51% pCR). (Cemiplimab, Pembrolizumab, Cosibelimab)
  • Immunotherapy-ineligible or refractory: Cetuximab ± radiotherapy, platinum-based chemotherapy, capecitabine; trials of intratumoural agents (RP1) and EGFR ADCs. (Cetuximab, Carboplatin, Vusolimogene oderparepvec)

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call