Appointment sheet
Eosinophilic solid and cystic renal cell carcinoma
Prepared with OnCo (onco.cc/prep/eosinophilic-solid-cystic-renal-cell-carcinoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
7 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example CK20 positive, CK7 negative, CD117 negative, Somatic or germline TSC1 or TSC2 mutation, Solid and cystic architecture with stippled eosinophilic cytoplasm, Stage), and what were the results?
- 3.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 4.For my situation (all stages), which of the standard options do you recommend and why?
- 5.Am I a candidate for Everolimus, and what side effects should I expect?
Any stage
- 6.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 7.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- Nephrectomy: Removing a kidney (radical) or just the tumour-bearing part of it (partial).
Tests and results to bring
Biomarker results to ask for: CK20 positive, CK7 negative, CD117 negative, Somatic or germline TSC1 or TSC2 mutation, Solid and cystic architecture with stippled eosinophilic cytoplasm, Stage (nearly always pT1).
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Partial nephrectomy; everolimus is the rational choice for rare metastatic disease on the tuberous sclerosis biology, without trial evidence. (Renal cell carcinoma, Nephrectomy, Everolimus)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call