Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Newly diagnosed: What is my exact diagnosis, stage, and grade, and which tests established them?

Newly diagnosed: Which biomarkers have been tested on my tumour (for example Share of the tumour made up of extracellular mucin, T category and nodal status as for adenocarcinoma), and what were the results?

Newly diagnosed: Which subtype is my cancer, and does that change the recommended treatment?

Newly diagnosed: Is germline (inherited) genetic testing recommended for me or my family?

All stages: For my situation (all stages), which of the standard options do you recommend and why?

All stages: Am I a candidate for Capecitabine, Gemcitabine + cisplatin, and what side effects should I expect?

Any stage: Would a second opinion at a high-volume centre change anything, and can you help arrange it?

Any stage: What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?

Appointment sheet

Mucinous carcinoma of the gallbladder

Prepared with OnCo (onco.cc/prep/gallbladder-mucinous-carcinoma/). Orientation, not medical advice; your team knows your case.

My details

Name

Date of appointment

Hospital and clinician

Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser

What I know so far

What is unclear to me

Changes since last time

My questions

8 on the sheet

Newly diagnosed

1.What is my exact diagnosis, stage, and grade, and which tests established them?
2.Which biomarkers have been tested on my tumour (for example Share of the tumour made up of extracellular mucin, T category and nodal status as for adenocarcinoma), and what were the results?
3.Which subtype is my cancer, and does that change the recommended treatment?
4.Is germline (inherited) genetic testing recommended for me or my family?

All stages

5.For my situation (all stages), which of the standard options do you recommend and why?
6.Am I a candidate for Capecitabine, Gemcitabine + cisplatin, and what side effects should I expect?

Any stage

7.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
8.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?

The words I may hear

Rokitansky-Aschoff sinus: Tiny pouches where the gallbladder lining pushes down into the muscle wall, common in gallbladders damaged by stones and inflammation.
Radical (extended) cholecystectomy: The cancer operation for gallbladder cancer: the gallbladder (if still present) is removed together with a rim of the liver it sits against and the lymph nodes along the bile duct and liver blood vessels.

Tests and results to bring

Biomarker results to ask for: Share of the tumour made up of extracellular mucin (over 50 percent defines the type), T category and nodal status as for adenocarcinoma.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

All stages: As for gallbladder adenocarcinoma: radical cholecystectomy where resectable, capecitabine after resection, gemcitabine and cisplatin with immunotherapy when advanced. (Gallbladder adenocarcinoma, Radical (extended) cholecystectomy, Capecitabine, Gemcitabine + cisplatin)

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser

What I was told

Agreed next steps, dates and who to call

Appointment sheet: Mucinous carcinoma of the gallbladder