Appointment sheet
Invasive mucinous adenocarcinoma of the lung
Prepared with OnCo (onco.cc/prep/invasive-mucinous-adenocarcinoma-lung/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
8 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example KRAS mutation, NRG1 fusion, ALK, BRAF, NTRK1 and ERBB2 alterations in KRAS wild-type cases, TTF-1 negative, HNF4A and gut markers positive), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 5.For my situation (all stages), which of the standard options do you recommend and why?
- 6.Am I a candidate for Zenocutuzumab, and what side effects should I expect?
Any stage
- 7.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 8.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: KRAS mutation (G12C and non-G12C), NRG1 fusion, ALK, BRAF, NTRK1 and ERBB2 alterations in KRAS wild-type cases, TTF-1 negative, HNF4A and gut markers positive.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Treated as lung adenocarcinoma by stage, with KRAS G12C inhibitors, zenocutuzumab for NRG1 fusions and matched inhibitors for other fusions when found. (Adenocarcinoma of the lung, KRAS G12C-mutant non-small-cell lung cancer, Zenocutuzumab)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call