Appointment sheet
Leydig cell tumour of the testis
Prepared with OnCo (onco.cc/prep/leydig-cell-tumour/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
6 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Inhibin and calretinin positive; germ cell markers negative, Testosterone, oestradiol and gonadotrophins, Size, necrosis, vascular invasion, atypia and mitotic count, Fumarate hydratase), and what were the results?
- 3.Is germline (inherited) genetic testing recommended for me or my family?
All cases
- 4.For my situation (all cases), which of the standard options do you recommend and why?
Any stage
- 5.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 6.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: Inhibin and calretinin positive; germ cell markers negative, Testosterone, oestradiol and gonadotrophins, Size, necrosis, vascular invasion, atypia and mitotic count (malignancy risk), Fumarate hydratase (rare germline cases).
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All cases: Orchidectomy (testis-sparing for small benign tumours); retroperitoneal node dissection for malignant features; no effective chemotherapy for metastatic disease. (Testicular germ cell tumours)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call