OnCo

Sign in to keep your watchlist

Your watched pages live in this browser. Sign in with an email link and OnCo keeps the same list on every device you use. Only your email address and your watchlist are stored.

Living with cancer· Appointment prep

Appointment sheet: Locally advanced and metastatic basal cell carcinoma

One page to bring and write on: your details, the questions for Locally advanced and metastatic basal cell carcinoma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Locally advanced and metastatic basal cell carcinoma

Prepared with OnCo (onco.cc/prep/locally-advanced-bcc/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

23 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example PTCH1 loss or SMO activation, Germline PTCH1 or SUFU, SMO resistance mutations after hedgehog inhibitors, Perineural invasion and bone or orbital involvement on imaging, High ultraviolet-signature tumour mutational burden), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Locally advanced, first line
  1. 5.For my situation (locally advanced, first line), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Vismodegib, Sonidegib, and what side effects should I expect?
  3. 7.How do the results of ERIVANCE BCC and BOLT apply to someone like me?
Neoadjuvant
  1. 8.For my situation (neoadjuvant), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Vismodegib, and what side effects should I expect?
After hedgehog inhibitor failure or intolerance
  1. 10.For my situation (after hedgehog inhibitor failure or intolerance), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Cemiplimab, and what side effects should I expect?
  3. 12.How do the results of Clinical Trial to Evaluate BO-112 in Patients With Basal Cell Carcinoma (BCC) and Study to Investigate the Efficacy and Safety of RP1 in Adult Patients With Organ Transplants and Advanced Skin Malignancies apply to someone like me?
Metastatic disease
  1. 13.For my situation (metastatic disease), which of the standard options do you recommend and why?
  2. 14.Am I a candidate for Vismodegib, Sonidegib, Cemiplimab, and what side effects should I expect?
Radiotherapy and local options
  1. 15.For my situation (radiotherapy and local options), which of the standard options do you recommend and why?
Gorlin syndrome
  1. 16.For my situation (gorlin syndrome), which of the standard options do you recommend and why?
  2. 17.Am I a candidate for Vismodegib, and what side effects should I expect?
  3. 18.How do the results of Efficacy and Safety of Patidegib Gel 2% for Preventing Basal Cell Carcinomas on the Face of Adults With Gorlin Syndrome apply to someone like me?
Any stage
  1. 19.Are there clinical trials I could join, for example of Cemiplimab, To Assess the Safety and Efficacy of SP-002 with Vismodegib for the Treatment of Locally Advanced Basal Cell Carcinoma, Clinical Trial to Evaluate BO-112 in Patients With Basal Cell Carcinoma (BCC), Efficacy and Safety of Patidegib Gel 2% for Preventing Basal Cell Carcinomas on the Face of Adults With Gorlin Syndrome?
  2. 20.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 21.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 22.I read that “Hedgehog inhibitor side effects lead many patients to stop before the tumour is controlled”. How does that affect my plan?
  5. 23.I read that “Only about a third of patients respond to cemiplimab after hedgehog inhibitor failure and there is no third line”. How does that affect my plan?

The words I may hear

  • Mohs surgery: Skin cancer surgery in which the tumour is removed in thin layers, each checked under the microscope on the spot, until the edges are clear; it spares the most normal skin.

Tests and results to bring

Biomarker results to ask for: PTCH1 loss or SMO activation (nearly universal; testing not needed for treatment), Germline PTCH1 or SUFU (Gorlin syndrome), SMO resistance mutations after hedgehog inhibitors (research), Perineural invasion and bone or orbital involvement on imaging, High ultraviolet-signature tumour mutational burden.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call