Appointment sheet
Mucinous tubular and spindle cell carcinoma of the kidney
Prepared with OnCo (onco.cc/prep/mucinous-tubular-spindle-cell-carcinoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
6 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Hippo pathway alterationsand nuclear YAP1, VSTM2A and IRX5 expression, Mucinous stroma with tubules and spindle cells, WHO/ISUP grade), and what were the results?
- 3.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 4.For my situation (all stages), which of the standard options do you recommend and why?
Any stage
- 5.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 6.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
The words I may hear
- Nephrectomy: Removing a kidney (radical) or just the tumour-bearing part of it (partial).
Tests and results to bring
Biomarker results to ask for: Hippo pathway alterations (PTPN14, NF2) and nuclear YAP1, VSTM2A and IRX5 expression (research markers), Mucinous stroma with tubules and spindle cells, WHO/ISUP grade (usually low).
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Partial or radical nephrectomy; advanced disease on the renal cell carcinoma page without a dedicated standard. (Renal cell carcinoma, Nephrectomy)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call