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Living with cancer· Appointment prep

Appointment sheet: Mucoepidermoid carcinoma

One page to bring and write on: your details, the questions for Mucoepidermoid carcinoma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Mucoepidermoid carcinoma

Prepared with OnCo (onco.cc/prep/mucoepidermoid-carcinoma/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

17 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example MAML2 rearrangement by FISH, Histological grade, Margin status and perineural invasion, Nodal spread and extranodal extension, Ki-67), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Low-grade, localised
  1. 5.For my situation (low-grade, localised), which of the standard options do you recommend and why?
Intermediate- and high-grade or node-positive
  1. 6.For my situation (intermediate- and high-grade or node-positive), which of the standard options do you recommend and why?
  2. 7.Am I a candidate for Cisplatin, and what side effects should I expect?
Recurrent or metastatic
  1. 8.For my situation (recurrent or metastatic), which of the standard options do you recommend and why?
  2. 9.Am I a candidate for Cisplatin, Carboplatin, Paclitaxel / nab-paclitaxel or related drugs, and what side effects should I expect?
Trials
  1. 10.For my situation (trials), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Gotistobart, and what side effects should I expect?
  3. 12.How do the results of A Study of Emiltatug Ledadotin (Emi-Le) in Participants With Solid Tumors apply to someone like me?
Any stage
  1. 13.Are there clinical trials I could join, for example of Gotistobart, A Study of Emiltatug Ledadotin (Emi-Le) in Participants With Solid Tumors, Pembrolizumab?
  2. 14.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 15.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 16.I read that “No targeted drug for the MAML2 fusion”. How does that affect my plan?
  5. 17.I read that “Grading systems disagree, so treatment intensity varies between centres”. How does that affect my plan?

The words I may hear

  • PD-L1 expression testing (22C3, SP142, SP263): A stain on the tumour biopsy that measures how much of the PD-L1 'don't attack me' protein is present, scored as a tumour proportion or combined positive score.
  • Extranodal extension (ENE): Extranodal extension means cancer in a lymph node has burst through the node's capsule into the surrounding fat; in head and neck cancer it is the single finding after surgery that most often turns radiotherapy into chemoradiotherapy, and in HPV-negative disease it moves the stage up.
  • Chemoradiation (chemoradiotherapy, CRT): Radiotherapy given at the same time as chemotherapy, which sensitises the cancer to radiation.

Tests and results to bring

Biomarker results to ask for: MAML2 rearrangement by FISH (confirms the diagnosis), Histological grade (AFIP or Brandwein system), Margin status and perineural invasion, Nodal spread and extranodal extension, Ki-67.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call