Appointment sheet
Primary cutaneous marginal zone lymphoma
Prepared with OnCo (onco.cc/prep/primary-cutaneous-marginal-zone-lymphoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
9 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Plasmacytic differentiation with light chain restriction, IgG4 expression, Staging to exclude extracutaneous disease, Borrelia serology in endemic areas), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
Solitary or localised
- 5.For my situation (solitary or localised), which of the standard options do you recommend and why?
Multifocal
- 6.For my situation (multifocal), which of the standard options do you recommend and why?
- 7.Am I a candidate for Rituximab, and what side effects should I expect?
Any stage
- 8.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 9.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: Plasmacytic differentiation with light chain restriction, IgG4 expression (39 percent), Staging to exclude extracutaneous disease, Borrelia serology in endemic areas.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- Solitary or localised: Excision or low-dose radiotherapy. (Marginal zone lymphoma)
- Multifocal: Observation, intralesional steroids or rituximab; systemic therapy only for extracutaneous spread. (Rituximab, Marginal zone lymphoma)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call