Appointment sheet
Type B1 and type B2 thymoma
Prepared with OnCo (onco.cc/prep/thymoma-type-b1-b2/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
8 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example WHO histotype on ITMIG criteria, Masaoka-Koga or TNM stage and resection status, Acetylcholine receptor antibodies, Terminal deoxynucleotidyl transferase-positive immature T cells), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 5.For my situation (all stages), which of the standard options do you recommend and why?
- 6.Am I a candidate for Cisplatin, Doxorubicin, Cyclophosphamide, and what side effects should I expect?
Any stage
- 7.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 8.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: WHO histotype on ITMIG criteria (epithelial cell density), Masaoka-Koga or TNM stage and resection status, Acetylcholine receptor antibodies (myasthenia gravis), Terminal deoxynucleotidyl transferase-positive immature T cells (distinguishes from lymphoma).
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Complete resection; postoperative radiotherapy for stage III or incomplete resection; platinum-based chemotherapy for unresectable or metastatic disease, as on the parent page. (Thymoma (WHO types A, AB, B1, B2 and B3), Cisplatin, Doxorubicin, Cyclophosphamide)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call