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All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Newly diagnosed: What is my exact diagnosis, stage, and grade, and which tests established them?

Newly diagnosed: Which biomarkers have been tested on my tumour (for example Stromal and mesenchymal stem-cell gene expression), and what were the results?

Newly diagnosed: Which subtype is my cancer, and does that change the recommended treatment?

Newly diagnosed: Is germline (inherited) genetic testing recommended for me or my family?

Any stage: For my situation (any stage), which of the standard options do you recommend and why?

Any stage: Am I a candidate for Pembrolizumab, and what side effects should I expect?

Any stage: How do the results of KEYNOTE-522 apply to someone like me?

Any stage: Would a second opinion at a high-volume centre change anything, and can you help arrange it?

Any stage: What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?

Appointment sheet

Mesenchymal stem-like triple-negative breast cancer (MSL)

Prepared with OnCo (onco.cc/prep/tnbc-mesenchymal-stem-like/). Orientation, not medical advice; your team knows your case.

My details

Name

Date of appointment

Hospital and clinician

Who is coming with me

What I know, what is unclear, changes to discuss

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What I know so far

What is unclear to me

Changes since last time

My questions

9 on the sheet

Newly diagnosed

1.What is my exact diagnosis, stage, and grade, and which tests established them?
2.Which biomarkers have been tested on my tumour (for example Stromal and mesenchymal stem-cell gene expression), and what were the results?
3.Which subtype is my cancer, and does that change the recommended treatment?
4.Is germline (inherited) genetic testing recommended for me or my family?

Any stage

5.For my situation (any stage), which of the standard options do you recommend and why?
6.Am I a candidate for Pembrolizumab, and what side effects should I expect?
7.How do the results of KEYNOTE-522 apply to someone like me?
8.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
9.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?

The words I may hear

Claudin-low breast cancer: Claudin-low breast cancers have lost the claudin proteins that hold epithelial cells together and have taken on the features of migrating, stem-like cells.

Tests and results to bring

Biomarker results to ask for: Stromal and mesenchymal stem-cell gene expression (a sample-composition signal, research only).

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

Any stage: As for triple-negative disease; the label has no treatment consequence. (Pembrolizumab, KEYNOTE-522)

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

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What I was told

Agreed next steps, dates and who to call

Tick the questions to print