Appointment sheet
Vulvar melanoma
Prepared with OnCo (onco.cc/prep/vulvar-melanoma/). Orientation, not medical advice; your team knows your case.
My details
Name
Date of appointment
Hospital and clinician
Who is coming with me
What I know, what is unclear, changes to discuss
Saved in this browserWhat I know so far
What is unclear to me
Changes since last time
My questions
8 on the sheetNewly diagnosed
- 1.What is my exact diagnosis, stage, and grade, and which tests established them?
- 2.Which biomarkers have been tested on my tumour (for example Breslow thickness and dermal mitotic rate, Ulceration, lymphovascular and perineural invasion, satellitosis, BRAF, KIT and NRAS mutation testing, Sentinel node status), and what were the results?
- 3.Which subtype is my cancer, and does that change the recommended treatment?
- 4.Is germline (inherited) genetic testing recommended for me or my family?
All stages
- 5.For my situation (all stages), which of the standard options do you recommend and why?
- 6.Am I a candidate for Nivolumab, Pembrolizumab, Ipilimumab or related drugs, and what side effects should I expect?
Any stage
- 7.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
- 8.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
Tests and results to bring
Biomarker results to ask for: Breslow thickness and dermal mitotic rate (survival), Ulceration, lymphovascular and perineural invasion, satellitosis, BRAF, KIT and NRAS mutation testing, Sentinel node status.
Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.
The treatments I may be offered
- All stages: Wide local excision by thickness with sentinel node biopsy; systemic therapy as on the mucosal melanoma page: checkpoint inhibitors, BRAF and MEK inhibitors for BRAF V600, imatinib for KIT. (Vulvar cancer, Mucosal melanoma, Nivolumab, Pembrolizumab, Ipilimumab, Imatinib)
From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.
Answers and next steps
Saved in this browserWhat I was told
Agreed next steps, dates and who to call