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A patient-founded US foundation for people with Waldenström macroglobulinaemia, a rare lymphoma, that runs support groups and educational forums and has funded research on the disease since 1999.
The International Waldenstrom's Macroglobulinemia Foundation began as the Waldenstrom's Macroglobulinemia Support Group, started by Arnold Smokler, a retired pharmacist diagnosed with the disease in 1994, who wrote to 21 patients listed by the National Organization for Rare Disorders, according to its history page. The page records a newsletter from 1995, the first patient conference in 1996, IRS approval as a 501(c)(3) in September 1996, and the adoption of the IWMF name by early 1998. It describes itself as patient-founded and patient-driven, with a mission to support and educate everyone affected by Waldenström macroglobulinaemia and to advance research, and states that it has invested more than $30 million in research since 1999. The IRS records it in Chicago, Illinois.
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