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Led the survivorship movement's organisation for sixteen years and co-edited the Institute of Medicine report that defined what survivorship care is.
Ellen Stovall led the National Coalition for Cancer Survivorship as chief executive from 1992 to 2008, the period in which the organisation moved to Washington, founded the Cancer Leadership Council, held the first national congress on cancer survivorship in 1995, and published Imperatives for Quality Cancer Care, the document the coalition's history credits with prompting the National Cancer Institute's director to establish the Office of Cancer Survivorship in 1996.
The coalition held one of two consumer seats on the Institute of Medicine's National Cancer Policy Board from 1996; its history records that Stovall served as vice-chair of the Institute of Medicine's Committee on Survivorship and co-edited its report on adult cancer survivorship. She was one of three editors, with Maria Hewitt and Sheldon Greenfield, of "From Cancer Patient to Cancer Survivor: Lost in Transition" in 2006. That report defined survivorship care as prevention, surveillance, intervention and coordination, and its second recommendation created the survivorship care plan.
She wrote and spoke as a person who had had cancer as well as an advocate; her remarks to the NCI and American Cancer Society survivorship symposium in June 2002 were published in Cancer in 2005. Oncology Times published "Remembering Cancer Advocate Ellen Stovall" in February 2016. ASCO's Ellen L. Stovall Award and Lecture for Advancement of Cancer Survivorship Care carries her name.
| Title | Journal | Year |
|---|---|---|
| From Cancer Patient to Cancer Survivor: Lost in Transition (co-editor, with Maria Hewitt and Sheldon Greenfield) | National Academies Press | 2006 |
| Remarks of Ellen Stovall, NCI/ACS Survivorship Symposium June 2002 | Cancer | 2005 |
Shares Seasons of Survival: the 1985 essay that named the problem, The founding of the National Coalition for Cancer Survivorship, and the word survivor, Lost in Transition: the 2006 report that defined survivorship care, and the care plan it invented, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it and the tags survivorship, history, advocacy.
Shares Seasons of Survival: the 1985 essay that named the problem, The founding of the National Coalition for Cancer Survivorship, and the word survivor, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it and the tags survivorship, history.
Shares Seasons of Survival: the 1985 essay that named the problem, The founding of the National Coalition for Cancer Survivorship, and the word survivor, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it, Survivorship care and late-effects surveillance and the tag survivorship.
Shares Lost in Transition: the 2006 report that defined survivorship care, and the care plan it invented, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it, Survivorship care and late-effects surveillance and the tags survivorship, history.
Shares The founding of the National Coalition for Cancer Survivorship, and the word survivor, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it and the tags survivorship, history.
Shares Lost in Transition: the 2006 report that defined survivorship care, and the care plan it invented, Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it, Survivorship care and late-effects surveillance and the tag survivorship.
Shares Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it, Survivorship care and late-effects surveillance and the tag survivorship.
Shares Recovery and rejuvenation roadmap: cure is not enough → survivorship gets a name → the cohorts that measured the cost → exercise proven as treatment → biological ageing measured and sold → repair, if anyone funds it, Survivorship care and late-effects surveillance and the tag survivorship.