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Living with cancer· Appointment prep

Appointment sheet: Locally advanced cervical cancer

One page to bring and write on: your details, the questions for Locally advanced cervical cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Locally advanced cervical cancer

Prepared with OnCo (onco.cc/prep/locally-advanced-cervical-cancer/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

22 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example FIGO 2018 stage including nodal status on PET-CT, Tumour volume on MRI, Para-aortic node involvement, Haemoglobin before and during radiotherapy, HPV type and p16), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Standard chemoradiation
  1. 5.For my situation (standard chemoradiation), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Cisplatin, and what side effects should I expect?
High-risk disease (node-positive IB2 to IIB, III to IVA)
  1. 7.For my situation (high-risk disease (node-positive ib2 to iib, iii to iva)), which of the standard options do you recommend and why?
  2. 8.Am I a candidate for Pembrolizumab, Cisplatin, and what side effects should I expect?
  3. 9.How do the results of KEYNOTE-A18 / ENGOT-cx11 / GOG-3047 apply to someone like me?
Induction option
  1. 10.For my situation (induction option), which of the standard options do you recommend and why?
  2. 11.Am I a candidate for Carboplatin, Paclitaxel / nab-paclitaxel, and what side effects should I expect?
  3. 12.How do the results of INTERLACE apply to someone like me?
Not recommended
  1. 13.For my situation (not recommended), which of the standard options do you recommend and why?
  2. 14.Am I a candidate for Carboplatin, Paclitaxel / nab-paclitaxel, and what side effects should I expect?
  3. 15.How do the results of OUTBACK / ANZGOG 0902 / GOG-0274 apply to someone like me?
Staging
  1. 16.For my situation (staging), which of the standard options do you recommend and why?
Central pelvic recurrence after radiotherapy
  1. 17.For my situation (central pelvic recurrence after radiotherapy), which of the standard options do you recommend and why?
Any stage
  1. 18.Are there clinical trials I could join, for example of HPV circulating tumour DNA to guide cervical cancer therapy, Pembrolizumab, Proton therapy, MRD / molecular residual disease testing?
  2. 19.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 20.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 21.I read that “Whether induction chemotherapy and pembrolizumab should be combined”. How does that affect my plan?
  5. 22.I read that “Access to brachytherapy and PET-CT where most patients live”. How does that affect my plan?

The words I may hear

  • Laparoscopy (keyhole surgery): Operating or looking inside the abdomen through a few small holes with a camera, instead of one large incision.
  • Radiotherapy: Using high-energy X-rays or particles to damage the DNA of cancer cells in a precisely aimed volume of the body.
  • Chemoradiation (chemoradiotherapy, CRT): Radiotherapy given at the same time as chemotherapy, which sensitises the cancer to radiation.

Tests and results to bring

Staging: Pelvic MRI and whole-body PET-CT; surgical para-aortic staging in selected cases.

Biomarker results to ask for: FIGO 2018 stage including nodal status on PET-CT, Tumour volume on MRI, Para-aortic node involvement, Haemoglobin before and during radiotherapy, HPV type and p16, PD-L1 (not required for pembrolizumab in this setting), Circulating HPV DNA after treatment (investigational).

Scans and tests linked to this cancer: MRI, PET/CT, MRD / molecular residual disease testing.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call