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Living with cancer· Appointment prep

Appointment sheet: Male breast cancer

One page to bring and write on: your details, the questions for Male breast cancer plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Male breast cancer

Prepared with OnCo (onco.cc/prep/male-breast-cancer/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

18 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example ER, PR, HER2, Germline BRCA1/2 and multigene panel, Ki-67 and genomic assays, Nodal status, Testosterone and oestradiol if aromatase inhibitors are considered), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Early stage
  1. 5.For my situation (early stage), which of the standard options do you recommend and why?
  2. 6.Am I a candidate for Trastuzumab, and what side effects should I expect?
Adjuvant endocrine, ER-positive
  1. 7.For my situation (adjuvant endocrine, er-positive), which of the standard options do you recommend and why?
  2. 8.Am I a candidate for Tamoxifen, Goserelin / leuprolide (ovarian function suppression), Letrozole (and other aromatase inhibitors), and what side effects should I expect?
Advanced, ER-positive
  1. 9.For my situation (advanced, er-positive), which of the standard options do you recommend and why?
  2. 10.Am I a candidate for Tamoxifen, Fulvestrant, Palbociclib or related drugs, and what side effects should I expect?
Germline BRCA carriers
  1. 11.For my situation (germline brca carriers), which of the standard options do you recommend and why?
  2. 12.Am I a candidate for Olaparib, Talazoparib, and what side effects should I expect?
  3. 13.How do the results of OlympiA apply to someone like me?
Any stage
  1. 14.Are there clinical trials I could join, for example of Olaparib, Palbociclib, Ribociclib, Trastuzumab deruxtecan?
  2. 15.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 16.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 17.I read that “Men are still under-enrolled in breast cancer trials; regulatory guidance and label harmonisation are the response”. How does that affect my plan?
  5. 18.I read that “Aromatase inhibitor efficacy and the need for GnRH co-treatment rest on small studies; registries are collecting outcomes”. How does that affect my plan?

The words I may hear

  • Hormone receptor status (ER / PR): Whether a breast cancer's cells carry receptors for oestrogen (ER) and progesterone (PR).
  • Germline BRCA mutation (gBRCA): An inherited fault in the BRCA1 or BRCA2 gene, present in every cell from birth, that greatly raises the risk of breast, ovarian, prostate and pancreatic cancer and makes those cancers sensitive to PARP inhibitors and platinum.
  • Mastectomy: Removing the whole breast, either for cancer or preventively in BRCA1/2 carriers, where bilateral risk-reducing mastectomy cuts breast cancer risk by 90% or more.
  • Hereditary cancer syndromes: About 5-10% of cancers arise from an inherited gene fault.

Tests and results to bring

Biomarker results to ask for: ER, PR, HER2 (as in women), Germline BRCA1/2 and multigene panel (recommended for all men with breast cancer), Ki-67 and genomic assays (Oncotype DX validated mainly in women), Nodal status, Testosterone and oestradiol if aromatase inhibitors are considered.

Scans and tests linked to this cancer: Germline (hereditary) testing, Mammography & tomosynthesis.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call