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Living with cancer· Appointment prep

Appointment sheet: Meningioma

One page to bring and write on: your details, the questions for Meningioma plus your own, the words you may hear, what to bring, the treatments the standard of care names, and room for the answers and agreed next steps. What you type stays in this browser. Print it or save it as a PDF. New to all this? Start with the first 60 days. Orientation, not medical advice.

Tick the questions to print

All of this cancer's questions start ticked. Untick what does not apply; ticks are kept in this browser. .

Your own questions

Shared with the prep pack, so questions you add there appear here too.

Print or save as PDF

Use (or Ctrl+P, Cmd+P on a Mac). To keep a copy, choose Save as PDF as the destination in the print dialog. Only the sheet prints; the controls stay on screen. Your typed notes print where you typed them; empty fields print as ruled lines to write on.

Appointment sheet

Meningioma

Prepared with OnCo (onco.cc/prep/meningioma/). Orientation, not medical advice; your team knows your case.

My details

Name
Date of appointment
Hospital and clinician
Who is coming with me

What I know, what is unclear, changes to discuss

Saved in this browser
What I know so far
What is unclear to me
Changes since last time

My questions

15 on the sheet
Newly diagnosed
  1. 1.What is my exact diagnosis, stage, and grade, and which tests established them?
  2. 2.Which biomarkers have been tested on my tumour (for example WHO grade with mitotic count and brain invasion, CDKN2A/B homozygous deletion and TERT promoter mutation, NF2 loss and monosomy 22, TRAF7, KLF4, AKT1, SMO, PIK3CA and POLR2A mutations, DNA methylation class and integrated molecular grade), and what were the results?
  3. 3.Which subtype is my cancer, and does that change the recommended treatment?
  4. 4.Is germline (inherited) genetic testing recommended for me or my family?
Incidental or small asymptomatic
  1. 5.For my situation (incidental or small asymptomatic), which of the standard options do you recommend and why?
Symptomatic or growing, accessible
  1. 6.For my situation (symptomatic or growing, accessible), which of the standard options do you recommend and why?
Small, skull base or surgically inaccessible
  1. 7.For my situation (small, skull base or surgically inaccessible), which of the standard options do you recommend and why?
Grade 2, incompletely resected, and all grade 3
  1. 8.For my situation (grade 2, incompletely resected, and all grade 3), which of the standard options do you recommend and why?
Recurrent, no surgical or radiotherapy option
  1. 9.For my situation (recurrent, no surgical or radiotherapy option), which of the standard options do you recommend and why?
  2. 10.Am I a candidate for Bevacizumab, Sunitinib, Everolimus, and what side effects should I expect?
Any stage
  1. 11.Are there clinical trials I could join, for example of Peptide receptor radionuclide therapy (PRRT), Bevacizumab, Everolimus, DNA methylation profiling?
  2. 12.Would a second opinion at a high-volume centre change anything, and can you help arrange it?
  3. 13.What supportive care (symptom control, nutrition, exercise, mental health, financial help) is available from the start?
  4. 14.I read that “No approved systemic therapy; grade 3 and recurrent unresectable tumours have few options”. How does that affect my plan?
  5. 15.I read that “Whether completely resected grade 2 meningiomas need radiotherapy (ROAM, NRG BN003)”. How does that affect my plan?

The words I may hear

  • Stereotactic radiosurgery (SRS): A single high dose of radiation delivered to a brain tumour or metastasis by beams converging from all sides, so the target gets a destructive dose while the surrounding brain gets little; no scalpel is involved despite the name.

Tests and results to bring

Biomarker results to ask for: WHO grade with mitotic count and brain invasion, CDKN2A/B homozygous deletion and TERT promoter mutation (assign grade 3), NF2 loss and monosomy 22, TRAF7, KLF4, AKT1, SMO, PIK3CA and POLR2A mutations, DNA methylation class and integrated molecular grade, Somatostatin receptor 2 expression (DOTATATE PET), Simpson grade of resection.

Scans and tests linked to this cancer: Active surveillance, MRI, DNA methylation profiling.

Bring copies of scan reports, pathology and blood results, and a list of every medicine and supplement.

The treatments I may be offered

From the standard of care recorded for this cancer; which apply depends on your stage and biomarkers. Ask which the team recommends and why.

Answers and next steps

Saved in this browser
What I was told
Agreed next steps, dates and who to call